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Toogoofy317 non-obstructed hcm, AICD 11-01-02 and 10-6-05 Find out more about Toogoofy317
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  • #16
    A cheaper step would be to contact your states Insurance commisioner and ask for an advocate to assist you. You may also want to talk to the billing office at the hospital and they may be able to offer some help (they are the ones getting the $$ - they will want to help).

    Good Luck.
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #17
      Thanks, I plan on doing just that. I've just felt so rotten that past few days. I hope I didn't come off rash yesterday. I've not been able to keep food down for a few days, I've got a kidney infection, blisters on the roof of my mouth, severe stomach pain, chest pain. So, I'm a wreck right now thank goodness I see my new GI doc tomorrow.


      Mary S.

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      • #18
        insurance commission

        M

        I hope you feel better and you (nicely and calmly) threaten them with reporting to the insurance commission.

        You are clearly being wronged and they need a spanking!

        Good luck,

        S

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        • #19
          Thanks Sarah,

          It just takes so much energy to do all of this! I tried to go to work today but it didn't work. By the time I went to my docs office my chest was killing me. So she sent me to the ER. Turns out I have the stomach flu, a severe urinary tract infection, and the dehydration exacerbated my HCM!

          And I was so close to feeling well.

          Mary S.

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          • #20
            Pulling through

            I know....physically and emotionally exhausting. Please don't try and do everything all on your own. If someone can help you make calls or track people down or whatever needs to be done, please let them.

            I don't have half the health issues you do and I can't imagine coming home from 8 hours at work and having to feed myself. My godsend of a boyfriend makes me dinner almost every night. I don't carry my laundry up and down stairs and I don't lift anything at work (even though I'm tech support and being able to move a computer is considered my job--they are nice about it).

            Hopefully you can find some creative ways to make life a little easier.

            Big hugs,

            S

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