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  • Question

    I've been reading up on HCM and have discovered that sudden death is a symptom. I ws just wondering if and when it happens, do you think it would be painful? Or would it happen so suddenly that you wouldn't be able to tell? And also, can people with HCM suffer from 'normal' heart attacks or are they too much for the body to handle? It would great if these questions had easy answers! (Not always the case but I can dream...)

  • #2
    I'm not sure about pain with sudden death but maybe someone here who's had an episode, saved by a defibrillator or some other method, can answer that one for you. As far as your other question, having HCM doesn't mean you can't have other heart disease, even the kind that may cause a heart attack. So yes, it's possible for someone to have a "normal" heart attack.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      My sudden death episode was just like fading out to go to sleep. No pain, no time for stress. Nothing to fear (except, of course, the onsequences).

      The kick from the ICD and finding myself on the floor somewhat battered from the fall was less pleasant but quite worthwhile as I have more of life to look forward to.



      • #4
        There was no pain involved when I had my sudden death 'event'. In fact, it was quite peaceful from what I remember. A slow fade to black...

        I didn't have an ICD then but I do now.


        • #5
          No pain involved here either. Just a very hard time breathing, then all the sudden, I'm waking up with a broken front tooth.


          • #6
            The posts above say it all. I have heard it refered to as a "light switch" there is no pain, no fear, just fade to black and you are 'sleeping' or so it seems.

            This post may be read by someone who has lost a loved one in this manner. This is something I am often asked by parents and loved ones who have lost someone. It is normally a comfort to know that there is no pain, no fear and only peace.

            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)


            • #7
              Well that was question i had when my brother passed away and his doctor said it happened really quick and he felt nothing, he said if Bob felt anything it was seconds so that made me feel better to know he went peacfully, i hope that helps

              Diagnosed 2003
              Myectomy 2-23-2004
              Husband: Ken
              Son: John diagnosed 2004
              Daughter: Janet (free of HCM)

              Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


              • #8

                I "passed out" 3 years ago. I have had doctors tell me since then that I died.

                I knew nothing. I don't know if I nearly died, or just passed out. I was walking, got dizzy, leaned my head against the wall, and then, the next thing I knew, I was waking up.

                A woman was holding my hand, and so was my dad. The woman said, "It's okay, the paramedics are coming." And all I could think was, "Why are you holding my hand, and what in the heck?" I didn't even know I had passed out. I felt like I was waking up from sleeping. Almost like I was in bed.

                What I learned was that if someone passes out, you should say, "You passed out" when they wake up. I was disoriented, and didn't have a clue what had happened.

                Anyway, from my experience, if I really did "die", I sure didn't know it. I always thought that if I was going to pass out, I would think beforehand, "I'm going to pass out". That did not happen.

                My dad was there, and said that I had no pulse and wasn't breathing. I don't know. There was never anything decided about why I passed out. My dad did artificial respiration on me.

                Anyway, my mom had a cardiac arrest in the hospital and then a medic did CPR on her and brought her back. She said, "I never even knew what happened." She always wished that they hadn't brought her back. (She was in very bad shape by then, and lived for a miserable 6 months after that until she passed away). My mom never got over the fact that the cardiac arrest was so painless and peaceful, compared to what she had to go through afterward.



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