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Glycogen-storage cardiomyopathy & Hypertrophic Cardiomy

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  • Glycogen-storage cardiomyopathy & Hypertrophic Cardiomy

    Hi Does Any One Know What is the difference between HCM & Glycogen-storage cardiomyopathy ?? And Why It can Be miss diagnose??

  • #2
    Please call the HCMA office at 973-983-7429 and speak with Lisa. She will be able to offer you assistance with your question.

    Kelly
    Life is 10% what happens to you and 90% what you do with what happens to you.

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    • #3
      It is very common to see Glycogen-storage disease diagnosed as HCM, it can take months to tell the difference. Typically only in children that you will see Glycogen-storage. If you have a family history of HCM then Glycogen-storage disease is not something you need to be thinking about.

      There are new treatments for Glycogen-storage disease and it is important to diagnoses it properly and begin appropriate treatment - it is frustrating that it can take months to know for sure sometimes.

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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