If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Glycogen-storage cardiomyopathy & Hypertrophic Cardiomy

Collapse

About the Author

Collapse
robinK Find out more about robinK
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    Glycogen-storage cardiomyopathy & Hypertrophic Cardiomy

    Hi Does Any One Know What is the difference between HCM & Glycogen-storage cardiomyopathy ?? And Why It can Be miss diagnose??
    Tags: None
  • #2
    Please call the HCMA office at 973-983-7429 and speak with Lisa. She will be able to offer you assistance with your question.

    Kelly
    Life is 10% what happens to you and 90% what you do with what happens to you.

    Comment

    • #3
      It is very common to see Glycogen-storage disease diagnosed as HCM, it can take months to tell the difference. Typically only in children that you will see Glycogen-storage. If you have a family history of HCM then Glycogen-storage disease is not something you need to be thinking about.

      There are new treatments for Glycogen-storage disease and it is important to diagnoses it properly and begin appropriate treatment - it is frustrating that it can take months to know for sure sometimes.

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment

      Previous template Next

      Today's Birthdays

      Collapse
      Working...
      X