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Where to have donations sent for *research*?

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  • Where to have donations sent for *research*?

    My father recently passed away and my brother died 3 years ago of this heart disease.

    Is there any organization to send donations for RESEARCH on this medical condition? American Heart Association seems to have too vague of a scope for any funds donated to be of use there.

    Thank you for your answers.

  • #2
    Hello,
    I would suggest you call the office on Tuesday. We can discuss this in more detail.

    Sincerely,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Welcome to the HCMA. I'm sorry for your losses. I hope that you find answers and support here. The phone number to call to talk to Lisa is 973-983-7429.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Welcome to the HCMA and I am very sorry to hear of your losses. You will find much support here from many. Many too unfortunately share losses as well and this is always so very sad . We are at least all amongst friends and those who care and will listen and offer comfort.

        I know Lisa will be the best person to speak to regarding your request.

        Best Wishes.

        Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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