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7 years old HCM boy


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  • 7 years old HCM boy

    My son diagnosed HCM in June in 2017. His Septum is 13mm when was diagnosed. The last screen he did in December 2017, not change for the thickness. We did gene test and just found out his siblings (6 years old boy and 1 year girl) have the same HCM mutation as their brother but they don't have the symptom and clear from HCM for now. This is such a shock news for myself and my husband. I did the gene test to find out if I am the carrier. Doctor said either me or my husband is the carrier. The good news is both of us are asymptomatic, does it give us a hope that our two other kids won't have the disease even they have the gene? Also, I am SO worry about my 1 year old daughter. What if she gets this disease at this young age? I know this will be a long journey .... I am new for this site. I appreciate your feedback! Really would like to find some parents that have the similar experience so we can have some support. Thank you!!!

  • #2
    Yes, having one of these mutations does not guarantee that you will develop the disease.

    Strong suggestion: call the HCMA office and ask them for guidance. This is what they do!

    Myectomy on Feb. 5, 2007.


    • #3
      Thank you Gordon! This is so much for me to process! I don't want to live in the fear until they are 18. My son's cardiologist said 18 years old is a cutoff time. it will have low likelihood that they will develop this disease if they haven't before 18.


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