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Terrance Find out more about Terrance
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  • out grow

    Can a person out grow cardiomyopathy? I was diagnosed with it at age of 7, last year I saw a cardiologist and he took an echo and said it did not show any signs of cardiomyopathy

  • #2
    Hi Terrance, The term "Cardiomyopathy" by itself means a pathology of the cardiac muscle.... So there are several types of Cardiomyopathy. On this site we are specifically looking at the disease called Hypertrophic Cardiomyopathy.HCM Since you are 58 yrs old and your diagnosis of "Cardiomyopathy" was supposedly made 51 years ago....I would question whether it was an accurate diagnosis for HCM. Even in this day and age it is sometimes difficult to get an accurate HCM diagnosis. If you have a family history of HCM or sudden cardiac arrest....It would be important to keep up regular screening as the symptoms of HCM can arise later in life. Are you having symptoms that have sent you to the cardiologist? Sometimes an echo can look " normal" at rest but show obstructive issues during exercise.
    Because HCM is considered genetic it is not generally " outgrown" but it can progress or stop progressing at anytime during a lifespan.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

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    • #3
      HCM wasn't a name that any doctor in the world would have used 51 years ago. In fact, the disease itself was just barely known then, and certainly wasn't called this. So . . . I don't know what they found (or thought they found).

      Why are you asking now? If you're having symptoms, then clearly you should get checked out, and we can suggest how/where to do that so you can have confidence in the results. But if you're just curious, my own inclination is to say not to worry - if they said cardiomyopathy back then, they wouldn't have meant HCM, and if you're not having any symptoms, enjoy your life!

      Gordon
      Myectomy on Feb. 5, 2007.

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