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Hcm and Hocm?


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Bethany Find out more about Bethany
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  • Hcm and Hocm?

    Hi! A few years ago I was diagnosed with hcm, I understood what this condition was/is and have adapted my life to fit it, but there is one issue, every six months I have a check up and occasionally the cardiologist will say that it is now hocm. How does this condition change so quickly? Also, I was told in the future I will have to have a surgery but I haven't had any more information than that, can you explain why and when I might need it?

  • #2
    Hi Bethany, Welcome....I see you are from England. There is an association in England, Cardiomyopathy.org that offers support and advice for people with heart muscle disorders.
    I also saw that you are only 17. Just as your body grows and changes through the adolescent years....your heart is still growing and changing. It will settle down and stabilize but things are still changing at your age. A change from HCM to HCM with obstruction just means that the way your heart is growing, some of the thickened muscle is getting in the way of streamlined blood flow through your heart....specifically from the left ventricle out of the aortic valve to the rest of your body.. Some people with obstruction, not all people have surgery to reduce the obstruction in the heart.
    Treatment for HCM and HOCM is based on symptoms and risk factors.....medication can help decrease the obstruction if the person is having symptoms.....chest pain, trouble breathing, exercise intolerance, light headedness....If medications do not control the symptoms then surgery might be considered.
    It is very important to see a cardiologist that specializes in HCM to get all of these things explained and your questions answered. Contact the Cardiomyopathy Association in the U.K. And I'm sure they will have recommendations for a specialist.
    Last edited by JillC; 06-09-2017, 11:45 AM.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani