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averoma Find out more about averoma
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  • #31
    I am a veteran side sleeper and was never told not to sleep on my side....So I did it very early on.....I found the painful part was turning from one side to the other during the night...When you turn you need to " log roll" keeping shoulders and hips on the same plane....not twisting your chest cavity. Hugging a pillow helps with turning also.
    It is common to get varying types of neck, shoulder and back pain.....a lot has to do with positioning on the OR table. The collar bone is connected at the sternum and gets stressed when they spread the sternum to do the surgery..
    You could get a neck and shoulder massage, that might help.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

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    • #32
      That helps, though I've been informed I have to sleep propped up. Reason being I ended up back in the hospital with pneumonia! Spent three days there on IV antibiotics. There is quite a bit of fleural effusion (about 2 to 3 inches). I felt I followed all discharge instructions accurately. However they informed me this can happen and can have. Itching to do with what you do or don't do. I came home yesterday on an oral antibiotic and lasix. I was prescribed lasix after surgery but only for a week. I feel I had a setback but hopefully will lick this too. I just feel more tired than probably I would have at this point. Lasix should do it. If it does. It, then they will have to do an aspiration. My recovery has had some bumps. but still happy I did it!

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      • #33
        You know, we can follow all the recommendations to a T but stuff still happens .... The main thing is not to blame yourself, not to push yourself too hard, go with the flow and listen to your body. You know how to do that. Deep breathing and walking ..... enjoying beauty everyday.... be gentle with yourself.
        After years of symptoms:
        Officially Diagnosed HOCM 2006
        Myectomy 3/11/13 at non-COE
        Extended Myectomy 7/23/14
        At Mayo with Dr. Joseph Dearani

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        • #34
          Thank you!❤️

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