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gradient obstruction of 79 at rest but no thickening of the heart

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lizh Myectomy and Mitral Valve Repair July, 2013 at UCLA Find out more about lizh
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  • gradient obstruction of 79 at rest but no thickening of the heart

    My cardiologist took my second echo last week. He says I definitely have HCM but that I only have the bp gradient of 79 and no abnormal thickening of the muscle. Is that really HCM? He says he doesn't know what is blocking the outflow - that it is not a valve problem and not due to thickening of the muscle. Does this sound familiar to anyone?
    After years of being told I was anxious and depressed, finally diagnosed in 2012
    Myectomy and Mitral Valve repair, UCLA, July 2013

  • #2
    Re: gradient obstruction of 79 at rest but no thickening of the heart

    I'm not sure any of us can answer this for sure, but I know that Dr. Lever has seen a lot of patients have gradient issues because of the papillary muscles and chordae in the heart not being in the right place. He has done presentations of this at the HCMA annual meeting, if I'm not mistaken. Are you being seen by an expert or a regular cardiologist?
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: gradient obstruction of 79 at rest but no thickening of the heart

      A regular cardiologist.
      After years of being told I was anxious and depressed, finally diagnosed in 2012
      Myectomy and Mitral Valve repair, UCLA, July 2013

      Comment


      • #4
        Re: gradient obstruction of 79 at rest but no thickening of the heart

        Nobody but a cardiac imaging specialist can be sure, but obviously you do have a significant gradient. I'd strongly suggest that you see an HCM specialist at one of the recognized Centers of Excellence. You might want to call the HCMA office to discuss who to see, and how to get in touch with them. You'll have to travel for this - there aren't any COEs in southern California - but a lot of us do, and it's worth it.

        Gordon
        Myectomy on Feb. 5, 2007.

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        • #5
          Re: gradient obstruction of 79 at rest but no thickening of the heart

          While as of now, there are no COEs here in So. Cal., there are a few cardiologists down here who do have significant experience with HCM and who treat quite a few patients. Please do call the office for some names.
          Daughter of Father with HCM
          Diagnosed with HCM 1999.
          Full term pregnancy - Son born 11/01
          ICD implanted 2/03; generator replaced 2/2005 and 2/2012
          Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

          Comment


          • #6
            Re: gradient obstruction of 79 at rest but no thickening of the heart

            I agree with the others. Call the HCMA office to get the names of some cardiologists who have experience with HCM. It sounds like you need more specialized care than you're getting.
            Reenie

            ****************
            Husband has HCM.
            3 kids - ages 23, 21, & 19. All presently clear of HCM.

            Comment


            • #7
              Re: gradient obstruction of 79 at rest but no thickening of the heart

              HCM in SoCal is not easy! We have TONS of cardiologist and probably less that 10 in the entire state that have more that 5-10 HCM patients!
              Being seen by an expert does many things, It puts you at ease, you have a management plan, your informed and your doctor truly KNOWS whats going on!
              Marc
              Diagnosed @ 48
              Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
              Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
              AICD - Valentines Day '08, Spark Plug replaced 11/14
              After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
              Quietly going insane . . .

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              • #8
                Re: gradient obstruction of 79 at rest but no thickening of the heart

                Ok....how do I call the office? Do you have a number?
                After years of being told I was anxious and depressed, finally diagnosed in 2012
                Myectomy and Mitral Valve repair, UCLA, July 2013

                Comment


                • #9
                  Re: gradient obstruction of 79 at rest but no thickening of the heart

                  Sorry! It's (973) 983-7429

                  Gordon
                  Myectomy on Feb. 5, 2007.

                  Comment

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