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How Can I Get in Touch With Lisa?


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  • How Can I Get in Touch With Lisa?

    I called and cancelled the appt with the interventional cardiologist re: the Septal Ablation because I read it takes 2 angiograms (with dye) to do that procedure. I barely have any kidney function left but am trying to preserve it. xray dye or the dye used in that procedure is toxic to kidneys and can cause kidney failure in healthy kidneys. I want to see if Lisa could ask one of her experts if they would do that procedure on someone with with 22% kidney function. I do not believe they would do open heart surgery. Otherwise I just have to learn to live like this I guess. What days is she there? When can you call and what is the #?

  • #2
    Re: How Can I Get in Touch With Lisa?

    Call during ordinary business hours during the week. Number is (973) 983-7429. Her schedule varies (so I can't tell you what time she's available) but you can leave a message or make an appointment to talk with her.

    Myectomy on Feb. 5, 2007.


    • #3
      Re: How Can I Get in Touch With Lisa?

      This is the BEST WAY TO GET ME!
      Call the office Monday - Friday between 9:30am and 3:00pm eastern time.
      Set an appointment with HCMA staff (normally Kelly!)
      Make sure we have your most recent echocardiogram in the office so that we can help more efficiently! (fax to 973-983-7870 all records are all records are confidential!!!)
      It normally takes 2-3 days to get on my calendar so please try to call well in advance of your doctors visits (and not in the car on your way there!)

      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        Re: How Can I Get in Touch With Lisa?


        They make special dyes for people like you. Talk to your doctor.