If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Wireless Transmission


About the Author


Isis1946@aol.com Find out more about [email protected]
  • Filter
  • Time
  • Show
Clear All
new posts

  • Wireless Transmission

    Last week, I received a call from the device clinic at CCF informing me that they had not gotten a single transmission of info from my ICD since it was implanted there in March. I was puzzled because the monitor was plugged into a hard-wired phone and was on and sitting on my bedside table. After a few phone calls to Medtronic, I found out that when Verizon installed the phone, they did not put some kind of filter on it.

    So, I opted for wireless at around $12/mo. If it does what it says it does, I can now move freely between my house and my trailer in Gettysburg without losing the nightly device checks.

    Anyone else out there who uses wireless??? How do I find out if it's working? Do I call CCF or Medtronic??


  • #2
    Re: Wireless Transmission


    I have a wireless monitor in my extra bedroom. You can send a test run to the monitoring facility such as CCF, you probably need to call them to set it up. Tuft's in Boston montors me and I am in Texas. Do not think of it as wireless through your whole house. I noticed when it time for an interrogation I need to at least walk by the room so the monitor can find me. Hope this helps. Get with CCF ASAP, you need to make sure your resulsts are getting reviewed on the other end.

    Diagnosed HCM 03-2009
    6-2009 Evaluated at Tuft's ICD/Pacer implanted/diagnosed with DD and severe scarring/no obstruction
    8-2009 Evaluated at the Cleveland Clinic/Myectomy recommended/gradient w/Armyl Nitrate
    10-2009 Myectomy CCF
    11-2010 Approved for Transplant Listing

    "I no longer live but exist" Bob in Texas.......


    • #3
      Re: Wireless Transmission

      Hi Anne

      I had the same issue due to having Verizon. The EP dept at my hospital ended up giving me a filter to plug into the back of my transmission device (you stick it into the back and then plug the phone wire into the filter).

      The filter turns Verizon DSL/Fios into an analog signal. The filter looks like it costs $1.

      Ask your hospital or Verizon about it or check out the website below, you'll save yourself some money by not having to use your cell phone.

      Here is exactly what is written on the back of the filter
      Excelsus (brand name)
      DSL Filter Model Z-230PJ
      Diagnosed during pregnancy age 30, July 2007
      2 mutated genes found in Feb 2009
      ICD Nov 12, 2009
      2 daughters born in '07 & '09. Normal EKGs.
      No known family history of HCM
      In 1995, at age 18, an echo for a misdiagnosed mvp showed HCM but it went unnoticed.
      Still jog and feel no symptoms on most days.


      • #4
        Re: Wireless Transmission

        I have I guess also what is a filter on my wireless device. It is a little white thing that plugs into the wall. I got it from my phone company. I have one from for computer as well. My wireless device works fine with it.

        Julie in Cincy