If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

June 1, 2008 message from Lisa


About the Author


Lisa Salberg Find out more about Lisa Salberg
  • Filter
  • Time
  • Show
Clear All
new posts

  • #46
    Re: June 1, 2008 message from Lisa

    "I am standing upon the seashore. A ship at my side spreads her white sails to the morning breeze and starts for the blue ocean. She is an object of beauty and strength. I stand and watch her until at length she hangs like a speck of white cloud just where the sea and sky come to mingle with each other.
    Then someone at my side says: 'There, she is gone!'
    'Gone where?'
    Gone from my sight. That is all. She is just as large in mast and hull and spar as she was when she left my side and she is just as able to bear her load of living freight to her destined port.
    Her diminished size is in me, not in her. And just at the moment when someone at my side says: 'There she is gone!' there are other eyes watching her coming, and other voices ready to take up the glad shout: 'Here she comes!'
    And that is dying."
    by Henry Van Dyke

    My heart so aches for you, but I'm also confident that Lori is one of those rejoicing in their reunion....

    Prayers of peace to you and your family, my friend,
    Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.


    • #47
      Re: June 1, 2008 message from Lisa


      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


      • #48
        Re: June 1, 2008 message from Lisa

        Lisa - Our thoughts and prayers are with you and your family.
        Sept 2000 - AICD Implanted.
        Sept 2000 - 1st Alcohol Septal Ablation @ Scripps.
        Enlarged part turned to mush.
        April 2001 - Attempted 2nd Alcohol Ablation. Failed
        April 2002 - Completion of 2nd Alcohol Ablation.
        April 2002 - Blood Clot 1 week after surgery. Placed on Coumadin.
        April 2003 - Bad reaction to Coumadin-4 Units Transfused & Vitamin K.
        Sept 2004 & Dec 2009 - Replacement AICD Implanted.

        Meds: Verapamil ER, Norpace, Lisinopril, Aldactone, Buspar, Celexa, Risperdal.


        • #49
          Re: June 1, 2008 message from Lisa

          Lisa, what a strong man he was and now he is at peace and your family can rest knowing he fought the good fight. Prayers are with you.

          Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
          ICD&Pacemaker 1996
          Heart transplant March 19, 2004 @ Mayo Rochester
          Mom of Kaye.


          • #50
            Re: June 1, 2008 message from Lisa

            My condolences. My thoughts are with you.

            Myectomy on Feb. 5, 2007.


            • #51
              Re: June 1, 2008 message from Lisa

              Larry J. Flanigan Jr.
              God Bless my dad -

              ROCKAWAY TWP. – Lawrence J. Flanigan Jr. died on Saturday June 7, 2008 from complications of hypertrophic cardiomyopathy at his daughter’s home in Rockaway Twp. He was 73.

              Born in Dover to the late Lawrence Sr. and Catherine (Krall) Flanigan, he was a lifelong resident of Rockaway Twp.

              Mr. Flanigan was proprietor of Viking Sewing Center in Morristown and Whippany since 1965, and retired from daily operations in 1995.

              He previously served in the Navy Reserves.

              Mr. Flanigan was a 50 year member of Hibernia Fire Co #1 of Rockaway Twp. where he had served as Rescue Captain, a trustee, and was an E.M.T. He was also a member of the Sons of Norway Nor Bu Lodge 427, the Lake Telemark Country Club, and had formerly been a Weeblow Scout leader all in Rockaway Twp, and the Water Gap Country Club of Pennsylvania. He was the chairman of the Hypertrophic Cardiomyopathy Assn. Lori Flanigan Annual Golf Outing and also a member of the Silver Shores Assn. in Key Largo, FL.

              He was predeceased by his daughter Lori Flanigan in 1995; and his siblings Patricia Gronemann and Tom Flanigan.

              He is survived by his loving wife Anne of 52 years; his son, Larry III and his wife Linda; two daughters, Lynn Perry and her husband Kevin, and Lisa Salberg and her husband Adam; and four grandchildren, John and Stacey Titus, Jennifer Tomasini and her husband Aaron; and Rebecca Salberg.

              Visiting hours will be held on Sunday, June 8 from 2:00 to 7:00 p.m. at Whitham – Kanapaux Funeral Home, 20 Keller Ave., Rockaway. A procession to the Hibernia Fire Co #1 for a Last Call service will follow the visitation.

              In lieu of flowers, donations may be made to: Hypertrophic Cardiomyopathy Assn., PO Box 306, Hibernia, NJ 07842 or via www.4hcm.org. Envelopes will be available at the funeral home.

              Messages of condolence may be sent to: www.rockawayfuneral.com.
              Last edited by Lisa Salberg; 06-07-2008, 04:41 PM. Reason: opps for got something!
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)


              • #52
                Re: June 1, 2008 message from Lisa

                I'm so sorry.

                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.


                • #53
                  Re: June 1, 2008 message from Lisa


                  So sorry that he is gone. Rest it peace Larry. Keep on fishing.

                  On best to you and the family.
                  Joe Del

                  Diagnosed @ age 45 with HCM June 2004; ICD Implant: September 2004. Fifteen years prior was tested and told had an anxiety attack. Second ICD implanted May 5, 2009 with adding second lead.

                  My biggest part is the depression and now on disability.

                  Tested positive for HCM gene and all three children are negative.

                  Husband and father of three children: Son 18 and two daughters 13 and 7.


                  • #54
                    Re: June 1, 2008 message from Lisa


                    I am so sorry for your loss. I know you and Larry will miss him greatly and I will continue to keep you both and your family in my prayers.

                    Diagnosed with HCM 1999 at age 48
                    Septal Myectomy at Mayo Clinic 8/3/2001
                    Dr. Ommen and surgeon Dr. Dearaini


                    • #55
                      Re: June 1, 2008 message from Lisa

                      It was indeed, a priviledge to have known Larry, to have shared special times with him. I will always remember his great sense of humor, but especially how much he cared for his family.

                      My thoughts and prayers are with you all.



                      • #56
                        Deepest Sympathies

                        Dear Lisa and the entire family,

                        Tim and I extend our deepest condolences. We send our prayers and support to all of you during this difficult time.

                        Tim & Lynn
                        Lynn Stewart
                        HOCM 4/2002
                        Cleveland Myectomy Crew 8/2002


                        • #57
                          Re: Deepest Sympathies

                          Our deepest condolences. You have honored him well.
                          Diagnosed @ 48
                          Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
                          Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
                          AICD - Valentines Day '08, Spark Plug replaced 11/14
                          After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
                          Quietly going insane . . .


                          • #58
                            Re: June 1, 2008 message from Lisa

                            We are keeping your entire family in our thoughts and prayers. It is an amazing thing that your father has done for all of us in the HCM community. Your brother's post brought tears to my eyes expressing the life your father led for the cause of HCM. Thank you Lisa for being there for all of us as if we were one of your family. Our deepest sympathy for this huge loss. Love, Donna and Rose


                            • #59
                              Re: June 1, 2008 message from Lisa

                              I will be reading this later today at dads service - I wanted to share it with you all.

                              Let me begin with heart felt thanks to all of our friends, neighbors and family who have extended such profound support and caring during these past few years and more specifically the past weeks. Hibernia Co 1, the many medical professionals, the dialysis center, the hospice workers, the friends on the internet, the neighbors, the old friends and simply everyone - Thank you does not even begin to say enough, we are humbled by your compassion.

                              My father’s life should not be measured by how he left this world, but how he lived his life. Although my father’s life was marked with the loss of so many he loved, he never forgot to enjoy life and LIVE it to the fullest. He lost his father when he was 17 shortly after he lost his aunt, both to hypertrophic cardiomyopathy, only we did not know it then. A few years later he lost his only sister to a car accident, he spoke of her fondly even 40 years after her passing. In 1990 his brother was taken in his late 40’s and 5 years later we lost our sister Lori at the age of 36 both to HCM. While each of these took a toll on dad – he was filled with life, energy and a passion for adventure. He could smile in the face of pain, crack a joke and make just about anyone smile – even if the joke were a bit worn.

                              My dad was born in Dover and lived his entire life as a resident of Rockaway Twp. He was the oldest of 3 children, his parents Lawrence Sr. and Catherine lived in Hibernia, and his father was a founding member of Company 1.

                              My parents were married for over 52 years – 52, long, interesting, turbulent, fun, rarely dull and story filled years. In the past 2 years mom went above and beyond the call of duty to ensure dad had the best care, it was not easy on her and we appreciate all she did for him, and he appreciated it too.

                              Early in his professional life his adventurous side took over and he set out to forge his own path by becoming a sole proprietary and opening Viking Sewing Center – around the corner from the Singer store, his former employer - not a simple task by any means and it became a true family affair with both he and my mother as well as each of us kids taking our turns working Saturdays and summers in the store – some of us even had our very own “office” space in the back – also known as a play pen! Larry joined him in the business as a young man and continues there to this day.

                              We, his children, and grandchildren knew him like no others, we knew his sense of humor, his work ethic, his need for levity in a serious situation and his passion for real gourmet food, hot dogs, sausage and peppers, egg foo young, stuffed cabbage – all really HOT – with a really cold ginger ale! And let us not forget his attempt to convince his young kids that cheese cake and ketcup make the perfect desert!

                              He had a passion for fishing which began in the streams, brooks, rivers and lakes of NJ and took him to the Rocky Mountains to fish the Bitterroot and to the Florida Keys where he graduated to the position of “Captain Larry’ aboard the “Lori – Anne” where he set out to Pickles and Molasses Reefs in search of yellow tail or on the bay to enjoy the beauty of the mangroves and catch some snappers and maybe a look at a manatee.

                              His passion for golf brought him to the Water Gap Country Club and the over the hill gang – he loved golf so much that one of us actually got married on a golf course as not to disrupt his Sunday tee time. All that golf did finally pay off when 2004 he got his first and only HOLE IN ONE! He was also great at organizing golf outings and did a great job on the two outings that were nearest and dearest to his heart - the fire department outing and the HCMA – Lori-Anne Memorial Outing.

                              Dad was a wonderful grandfather and spoiled his grandkids in so many ways! If it was not fishing trips on the Lori-Anne, or use of the golf cart (even when you were not quite 14!), it was hand made building blocks made with love (al be it a bit bigger then the ones from the store) or funny gifts at holidays (like jars of pickles), Your grandfather loved you all.

                              While family was keenly important to my father there was one other relationship that shared his heart – Company one and all the men and women who served with him, he loved you one and all. You will know just how much my dad liked you by his choice of greeting he gave you – the cruder the comment the deeper his affection – and you all know what I mean! To those who helped arrange the transport and to those who actually came to pick dad up from Cleveland in 510 there are simply no words to tell you how much that meant to him and to the family – you loved him as much as we did and we know that.

                              2 weeks ago while dad was in the hospital I had a meeting with the staff of Morristown Memorial and asked them to assist me in a program for the volunteer fire and first aiders of Rockaway Twp They have agreed to conduct a free and confidential heart screening for all Rockaway Twp. volunteers on September 20, 2008. The idea for this originated from the loss of our dear friend’s Keith Idland after his sudden passing this past year. Originally I thought it would be named in honor of my father and in memory of Keith – now the event will be in memory of 2 neighbors, brothers in the company and friends of 35 years – Keith and Larry’s Heart Fair will help you each ensure that your hearts are strong, healthy and fit. Had someone done this for them when they were younger they may have both lived longer and or healthier lives.

                              I will share an email I received this morning from an HCM researcher in Minneapolis it really sums up my dads life in just a few words.
                              “Your dad was a good guy who lived life the right way----with integrity, fairness and with love of family. It is the highest compliment.”

                              I will share one story about my dad with you and ask 2 things in closing: First the story – one day when I was about 12 my dad stopped at the bus stop and asked – “do you have any tests today” I said “no” He then said – get in the car we are going fishing – it was a fun day – I cant remember if we caught anything – but I know we had to get home before the bus so mom would not find out!

                              The moral of the story - take the time to just say – the **** with the rules and go FISHING – life is simply too short.

                              In closing I will ask each of you to commit a random act of kindness in memory of dad he was a kind sole with a great big heart –

                              We loved him and will miss him –
                              You have earned your rest.
                              Rest in peace dad
                              Knowledge is power ... Stay informed!
                              YOU can make a difference - all you have to do is try!

                              Dx age 12 current age 46 and counting!
                              lost: 5 family members to HCM (SCD, Stroke, CHF)
                              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                              Therapy - ICD (implanted 97, 01, 04 and 11, medication
                              Currently not obstructed
                              Complications - unnecessary pacemaker and stroke (unrelated to each other)


                              • #60
                                Re: June 1, 2008 message from Lisa


                                Thanks for this touching, beautiful testimony to your father. I wish I had known him.

                                God Squad co-moderator
                                Nothing is as gentle as strength and nothing is as strong as gentleness