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Message from Lisa July 2005

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Lisa Salberg Find out more about Lisa Salberg
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  • Message from Lisa July 2005

    Hello everyone,

    You may have noticed I have been a bit quiet the past week or so, let me explain why...

    I am writing to tell you all that I have made the cut and am officially starting my new life! After 17 years as the Human Resource Manager of a wonderful company I have left my position to dedicate more time to things with more meaning in my life, my family and the HCMA. I will return to my position on Monday to tie up some small items then I am completely done with that chapter of my life. It is a bitter sweet moment for me as I will miss my friends, co-workers and many relationships I have developed over the years. However it is time to move on.

    I am looking very forward to having more time to work with all of you and your families in our quest to better understand HCM and raise awareness.

    This is an exciting new chapter in the life of the HCMA.

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!!! And now, get to work!
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

    Comment


    • #3
      Cynthia,

      :P :P :P :P :P

      Love,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Lisa,

        I am so excited! I feel like we won the lottery. I know you will hear similar from many ! We are the very lucky ones!

        I know you will have very little time to mourn your loss of this fullfilling part of your life that you are closing the chapter on, so we will keep you very busy as you pursue this wonderfull cause you have now dedicated part of your life to. Thank you in advance for all the wonderfull hope you will bring us all through your hard work and dedication.

        Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

        Comment


        • #5
          Hi Lisa
          You have been so busy with your job & life, but you made time to help others. You are amazing!

          I'm sure your co-workers will miss you, too. Who wouldn't ??

          I shouldn't say this, BUT, it is their loss, our gain.

          Thank you so much for helping so many people.

          Sincerely
          Esther

          Comment


          • #6
            Lisa

            I know how hard it is leave a job you have had for so long, with the people you will be leaving but i have found i took alot of friends with me what i mean is they are still my friends and see you will keep us alltry to rest up this weekend and look forward to seeing you around more on the board

            Shirley
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

            Comment


            • #7
              Lisa,

              Congratulations! I know you are making a great decision not only for yourself and family, but for all of us and all future HCMA members.

              Best of everything,

              John
              41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

              Comment


              • #8
                Thank You, Thank You, Thank You!!

                You are going to help countless more people with this heart disease and save many more lives.

                Lisa, you say it best:
                Knowledge is power ... Stay informed!
                And that is what you are giving so many people... knowledge, information and power.

                You help many more people than you know.
                Thank you.

                Sincerely,
                Eve
                49 yrs. old
                Diagnosed at 31.
                Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                My brother passed away suddenly at 34 yrs old from HCM.
                2 teenage children, ages 17 and 15.

                Comment


                • #9
                  Lisa,

                  what wonderful news for all of us! I think everyone has said it all. We are SO fortunate to have someone like you to guide us, inform us and support us...I wish you the very best!

                  Sincerely,
                  Cynthia
                  \"It is not length of life, but depth of life.\"

                  Ralph Waldo Emerson

                  Comment


                  • #10
                    Lisa,

                    I think it's great! I know that you will surely miss some aspects of your old life, but how lucky for us!

                    Hope I'm not too forward in saying that now you can begin your true life's calling.

                    Thanks for your decision!

                    Debbie

                    Comment


                    • #11
                      Well, all I have to say is:


                      Whooo Hooooo!!!!!



                      Comment


                      • #12
                        Thank you for being here for us.

                        Comment


                        • #13
                          Thank You for the sacrifice you are making...


                          Tigger1
                          " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

                          Comment


                          • #14
                            Go Lisa!!

                            With your dedication and passion, you will be rewarded and successful in anything you do. I can only say that I wish you many many best wishes.

                            Paul

                            P.S. Still feeling great. Its like a new life!
                            Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.

                            Comment


                            • #15
                              Thanks

                              You have made a difference in so many lives with this website. Thanks for all you do and I can't wait to see how many more lives will be encouraged, helped, supported, educated and cared about through your efforts! Janet
                              My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

                              Comment

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