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Walk for Sarah

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Lisa Salberg Find out more about Lisa Salberg
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  • Walk for Sarah

    I am off to Texas today to walk for Sarah! My daughter will be joining me and at last count a few days ago so will about 800++ other people! What a wonderful statement about a community, a family and the heart of Texas. Ya know we always joke that "everything is big in Texas" But I think they are right

    I am honored to be part of this event and even if you can not be there take a moment on Saturday to think of Sarah - to think of all those without the benefit of knowledge of HCM- and to think of the difference we all can make together!

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Sending our best - to Texas! Have a great trip. This is a generous and wonderful way for Sarah's family to honor her. Linda

    Comment


    • #3
      Lisa

      Have fun and walk for me too, I wish i could be there

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment


      • #4
        I have arrived in Texas and my goodness I am so very impressed with this community! There are signs everywhere "walk for Sarah", the newspapers, the TV News, it is everywhere!!!

        The woman at the hotel checkin knew all about the event and was excited about it.

        It is estimated that there are 1000 walker/runners already signed up and there maybe as many as 500-800 walk-ins in the morning.

        They really do do everything BIG in TEXAS!

        I will report more after the event!

        God Bless Sarah!

        Peace to all,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Lisa

          That is so great!!!!!!!!!!!!!!!!!!!!!!!!!




          Shirley
          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

          Comment


          • #6
            What a great tribute to Sarah! So glad you and Becca are there to see and experience it all .

            Pam
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

            Comment


            • #7
              With a big threat of thunderstorms - it was a shakey start this morning... But the sun came out - the people came in droves and over 1200 people walked/ran for Sarah - and for all of you!!

              It was a wonderful day in Texas and we have so many people to thank that I will have to write an entire article to make sure I get them all in!

              But I wanted to give you all a quick update and tell you all what a WONDERFUL Day this was for all of us...and to let you know that our little guardian angel Sarah sent wonderful weather and lots of love to Texas today.

              To Laura, Luther, Reesa, Kate, Kat, Nancy, Michael, all the volunteers all the kids and the ENTIRE community - THANK YOU ALL you touched my heart!

              Peace to all,
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment


              • #8
                Lisa, What a wonderful report! I'm sure it meant the world to Sarah's family to see such a show of support. To have you and Becca with them had to be very special also. Sarah was very special, indeed. Linda

                Comment


                • #9
                  Now that is just so wonderful, I bet Sarah is looking down on us smiling, thank you very much The Big State of Texas, you really do have big HEARTS

                  Shirley
                  Diagnosed 2003
                  Myectomy 2-23-2004
                  Husband: Ken
                  Son: John diagnosed 2004
                  Daughter: Janet (free of HCM)

                  Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                  Comment

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