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Hcma Bracelets On The Way!

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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    Hcma Bracelets On The Way!

    In 4 weeks the HCMA will have awareness bracelets!!!!!
    Keep your eyes on the HCMA website for MORE information!!!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    With my med-alert on one wrist and my watch on the other it looks like I may need to grow another arm, but I can't wait to get one!
    Leon
    God Squad co-moderator
    Nothing is as gentle as strength and nothing is as strong as gentleness

    Comment

    • #3
      I'd like to add one to my LiveStrong arm.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment

      • #4
        Sign me up!!!
        Fred

        Comment

        • #5
          Me too i want to get one also

          Shirley
          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

          Comment

          • #6
            I can't wait. I was just thinking yesterday that the HCMA should have one!


            Mary S.

            Comment

            • #7
              I don't know how I missed this post.

              Sign me up, too.
              Esther

              Comment

              • #8
                I would like to order one too. I will wear it next to my Medical Alert Braclet.
                49 yrs. old
                Diagnosed at 31.
                Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                My brother passed away suddenly at 34 yrs old from HCM.
                2 teenage children, ages 17 and 15.

                Comment

                • #9
                  Got another idea,
                  (That’s the second one this year already – wow.)

                  If the HCMA bracelet has a chain, how cool would it be to be able to hang little charm like symbols off it for other conditions as well – like other medical conditions, allergies, and the like? It would make for a fancy medical alert bracelet, and be a lot nicer then the stuff that’s on the market now.
                  Burt

                  Comment

                  • #10
                    hi lisa, could I get a whole bunch of bracelets . Im pretty sure Icould help raise money at work ,church etc. let me know thanks mike
                    One day at a time.

                    Comment

                    • #11
                      Re: Hcma Bracelets On The Way!

                      Originally posted by Lisa Salberg
                      In 4 weeks the HCMA will have awareness bracelets!!!!!
                      Keep your eyes on the HCMA website for MORE information!!!

                      Lisa

                      Pre-Order your Let the Beat Go On wristbands by clicking here!
                      Thanks, Tim
                      Forum Administrator

                      Comment

                      • #12
                        are these the popular silicone (rubber-like) bracelets?
                        \"It is not length of life, but depth of life.\"

                        Ralph Waldo Emerson

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                        • #13
                          Yes - they are. I will post a picture soon!
                          Lisa
                          Knowledge is power ... Stay informed!
                          YOU can make a difference - all you have to do is try!

                          Dx age 12 current age 46 and counting!
                          lost: 5 family members to HCM (SCD, Stroke, CHF)
                          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                          Therapy - ICD (implanted 97, 01, 04 and 11, medication
                          Currently not obstructed
                          Complications - unnecessary pacemaker and stroke (unrelated to each other)

                          Comment

                          • #14
                            I would like to order, but Tim's link does not work for me-- looks like the php has a logic error. I can discuss the problem off-line with Tim. My email is [email protected].

                            Comment

                            • #15
                              Originally posted by marvwaschke
                              I would like to order, but Tim's link does not work for me-- looks like the php has a logic error. I can discuss the problem off-line with Tim. My email is [email protected].
                              I believe that I have corrected the processing error. Should you receive any other errors, please send me a private message or email: [email protected] .
                              Thanks, Tim
                              Forum Administrator

                              Comment

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