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Updates are coming January 9, 2005


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Lisa Salberg Find out more about Lisa Salberg
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  • Updates are coming January 9, 2005

    January 9th is an important day here at the HCMA. 2 years ago on January 9th this message board was reborn into the format we all enjoy today. January 9 was also my sister Lori's birthday, she would have been 46 years old this year (however she would likely have claimed she was only 40 ).

    This year our birthday gift to Lori is to have the HCMA's website take on a new look and feel with many new options. We hope you like the new look and we look forward to your input once it is up and running.

    On the new site we will have a page for memorials to those lost to HCM, Please email your photos and stories to be included on this page. You can email them to [email protected]

    Happy New Year to ALL!
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)