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Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

    Hi from New Orleans!

    On Saturday while walking around New Orleans my cell phone rang...it was Marleen - THEY HAD FOUND A PERFECT MATCH!!! Ali was about to ge a new heart!

    I had a call back within a few hours from Michael -Ali's dad - She had the heart and all was well! Obviously the next few days are going to be an adjustment for Ali and her new heart but she is doing well.

    She had been upgraded to a status 1B late last week - she needed this heart and THANK GOD she recieved it in time.

    My thoughts, prayers and hopes are with Ali and her entire family as they set out on this new portion of their journey with heart disease.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
  • #2
    Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

    Wow!!!!

    CONGRATULATIONS TO ALI AND HER FAMILY!!!!! YEA!!!!

    This is great news! I pray that she continues to do well with her new heart and that she has a speedy recovery and a full life.


    ((((((((Big Hugs))))))))

    Eileen
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.

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    • #3
      Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

      My prayers go out to Ali, her family and the family of the heart donor. A new heart brought by the sacrifice of another wonderful soul is a gift from God. May all be blessed on this journey.

      Love and Light,
      Sharon

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      • #4
        Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

        HUGS AND PRAYERS to ALI....what wonderful news
        \"It is not length of life, but depth of life.\"

        Ralph Waldo Emerson

        Comment

        • #5
          Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

          I'm so thankful!

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment

          • #6
            Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

            Ali and your entire family are in my prayers



            Shirley
            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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            • #7
              Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

              Such great news!!!

              I will say many prayers for Alie to continue to do well with her new heart and for her new beginning.

              Pam
              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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              • #8
                Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

                Please tell Ali and her family how happy I am for them. I do know the emotions that go with all of this. I will pray for she and her donor family. It is truly giving the gift of life. Congratulations Ali.
                Midge

                Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                ICD&Pacemaker 1996
                Heart transplant March 19, 2004 @ Mayo Rochester
                Mom of Kaye.

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                • #9
                  Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

                  My prayers are also with Ali and her family and the donor's family.

                  Rhoda

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                  • #10
                    Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

                    I spoke with Marleen last night. Ali is doing very well and is up and around feeling GREAT!

                    All those good thoughts paid off!... THANK YOU ALL!

                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment

                    • #11
                      Re: Ali Has A New Heart!!!!!!!!!!!!!!!!!!!

                      THANK YOU GOD FOR HELPING ALI...



                      Tigger1
                      " Real Courage Is Being Scared To Death But Saddling-Up Anyway "

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