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November Message from Lisa

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Lisa Salberg Find out more about Lisa Salberg
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  • November Message from Lisa

    It is hard to believe but I am off to the American Heart Association again. This year AHA is in New Orleans. In 1996 I attended my first AHA Scientific sessions and it was in New Orleans so this is a time to look back at how far we have come since then... and WOW what a difference 8 years makes!

    I will be in New Orleans with Linda Price today through November 10. I will check the board as time is available. Kelly will be in the office and can reach me if I am needed.


    Take care!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: November Message from Lisa

    Lisa, how exciting!

    I wish you a safe, informative and enjoyable trip



    Hugs -- Eileen
    49 yrs. old
    Diagnosed at 31.
    Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
    First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
    Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
    Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
    My brother passed away suddenly at 34 yrs old from HCM.
    2 teenage children, ages 17 and 15.

    Comment


    • #3
      Re: November Message from Lisa

      Lisa

      Please enjoy yourself you need the break and protect that ICD sight i imagine it is still tender

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment


      • #4
        Re: November Message from Lisa

        ICD is doing fine - the walking is what is going to KILL ME! UFF DA MY FEET HURT! The good news is that it is all flat here - I feel like I can walk forever on flat land!
        One hill - stairs or incline I am looking for an alternative route!

        Take care!
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Re: November Message from Lisa

          Hi Lisa,

          I'm glad things are going well on your trip. (Well, except for all the walking )

          I wish you a safe and comfortable trip home.


          Hugs -- Eileen
          49 yrs. old
          Diagnosed at 31.
          Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
          First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
          Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
          Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
          My brother passed away suddenly at 34 yrs old from HCM.
          2 teenage children, ages 17 and 15.

          Comment

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