I would like to issue a bit of caution to you all. Today I was informed of a company that is going around preforming "HCM screenings" for a fee (under $100.00) First of all this "Company" is a nurse and a technician. They have no cardiologist involved in the screening process. I have seen their "family history / patient information sheet" it is poor at best. The letters they send out explaining HCM are outright wrong and misleading. I also found out that they are using the name of the HCMA in their sales pitch to school nurses.
There are GOOD screening programs in the USA - this is not one of them. I have been in touch with officials in the state where this is happening and hope they get involved to stop these misleading and dangerous 'screenings'. I am withholding the name of this company at this time at the request of state officials.
Getting accurate information out on HCM is what is important to the HCMA - when someone places false information into the public that sets back our work and causes confusion. As an example some of the liturature they have states "HCM is a congential disease and is sometimes caused by a virus"..."Unlike other screenings your child only needs to be screened once while in high school".... there are other statements that are similar. To those of us that understand HCM we know how harmful statements like this can be.
Good night,
Lisa
There are GOOD screening programs in the USA - this is not one of them. I have been in touch with officials in the state where this is happening and hope they get involved to stop these misleading and dangerous 'screenings'. I am withholding the name of this company at this time at the request of state officials.
Getting accurate information out on HCM is what is important to the HCMA - when someone places false information into the public that sets back our work and causes confusion. As an example some of the liturature they have states "HCM is a congential disease and is sometimes caused by a virus"..."Unlike other screenings your child only needs to be screened once while in high school".... there are other statements that are similar. To those of us that understand HCM we know how harmful statements like this can be.
Good night,
Lisa
Comment