If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Off to London

Collapse

About the Author

Collapse

Lisa Salberg Find out more about Lisa Salberg
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Off to London

    Hi everyone,

    Well after long thought and the events of this week I have made up my mind and will be heading to London in the morning. I will be attending the Cardiomyopathy Associations Medical Conference. I will be heading to the UK to hear the European thoughts on HCM and management of HCM. I will be back in NJ on Sunday.

    Becca is doing just fine and will have a nice few days with her dad.

    The Vickie Keller Run is this weekend and I wish them all the best with the event! I recieved calls from 2 radio/TV stations in the area who seemed interested in covering the event!

    Have a great weekend everyone!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: Off to London

    Lisa, You have a great trip and give our best to all our friends in the UK - Linda

    Comment


    • #3
      Re: Off to London

      wow! you're a real world traveller! say hi to Amy Williams for me...hope all is fine with her. Have fun at the conference
      \"It is not length of life, but depth of life.\"

      Ralph Waldo Emerson

      Comment


      • #4
        Re: Off to London

        Lisa

        Have a great time and hope you have a safe trip

        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

        Comment


        • #5
          Re: Off to London

          Tally Hoe Lisa and give our regards to all our friends over the pond.
          Really have a wonderfull trip. You take pictures for all us arm chair travelers. Safe trip.
          Pam
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

          Comment


          • #6
            Re: Off to London

            Have fun, be safe, and do tell Amy hi for me.

            Reenie
            Reenie

            ****************
            Husband has HCM.
            3 kids - ages 23, 21, & 19. All presently clear of HCM.

            Comment


            • #7
              Re: Off to London

              Hi Lisa,

              Hope you have a good, safe productive trip. Be good, and don't do anything we wouldn't do!

              Debbie

              Comment


              • #8
                Re: Off to London

                That's great, it'll be interesting to hear their views and see if they are doing things different in the treatment of HCM.
                I hope you're taking time to do some touring as well, have a great time.
                Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                So if you are capable of thought then you are capable of great things
                Good luck and stay well.
                Glen

                Comment


                • #9
                  Re: Off to London

                  Have a great trip, Lisa, And give yourself time to relax and enjoy, too :P

                  Glad to hear Becca's doing better, too.

                  -Ange

                  Comment


                  • #10
                    Re: Off to London

                    Hey,
                    With Lisa gone, do you think it would be OK to say nice things about her behind her back?

                    And I hope Becca grows up to be just like her mom – but they are awfully big shoes to try to fill. Better for her if she leads her own life. Anyway, by time she’s an adult just maybe stem cell research will have paid off to the point where they can make the genetic changes necessary to stamp out HCM altogether. Whoa, wouldn’t that be something?
                    Burt

                    Comment


                    • #11
                      Re: Off to London

                      I hope you're right, Burt...I'm all for stem cell research...guess who I'm voting for?? (that's just ONE reason )
                      \"It is not length of life, but depth of life.\"

                      Ralph Waldo Emerson

                      Comment


                      • #12
                        Re: Off to London

                        hello from london!!!
                        I am on a computer in the airport. Amy just let me off and I am ready to head home. The meeting was great I am glad the I attended.
                        I am ready to go home and spend time withmy family.

                        more details to follow!!!
                        Lisa
                        Knowledge is power ... Stay informed!
                        YOU can make a difference - all you have to do is try!

                        Dx age 12 current age 46 and counting!
                        lost: 5 family members to HCM (SCD, Stroke, CHF)
                        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                        Therapy - ICD (implanted 97, 01, 04 and 11, medication
                        Currently not obstructed
                        Complications - unnecessary pacemaker and stroke (unrelated to each other)

                        Comment


                        • #13
                          Re: Off to London

                          Hi Lisa
                          I hope you enjoyed your trip to London. All work and no play makes Lisa a bad girl...lol

                          We're all waiting for a report from you, but take your time, enjoy your family first.

                          Thank you for all that you have done for us.
                          Esther

                          Comment

                          Today's Birthdays

                          Collapse

                          Working...
                          X