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BIG CHANGES COMING to the HCMA website and message board!


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Lisa Salberg Find out more about Lisa Salberg
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  • BIG CHANGES COMING to the HCMA website and message board!

    Hello to all,
    First of all - get yourselves ready for some BIG changes... but don't worry we are going to make this as easy as we can.

    1. This version of the message board is going to change to a Cloud based infrastructure - what does that mean for YOU the user? It means it will look and operate a little different. It also means that some new features will appear and some of the old ways to navigate will look a little different.

    2. In the next few weeks the HCMA website will look VERY different and have MANY more ways for YOU the HCM community to communicate with the HCMA and with each other.

    3. THIS message board will continue to operate OUTSIDE of the rest of the HCMA website - WHY? The main website will have a new log in feature, that log in will be attached to your email and your user information, for more your name. Your privacy and ability to communicate OPENLY while protecting your identity is important to us, therefore you will have a log in for THIS message board AND the HCMA website.

    4. The new website will ALSO contain a message board type system - however that will be used to communicate about HCMA events, fundraisers, awareness events and not person experiences with HCM, this board will serve that purpose.

    5. If you have any questions as we move forward do not hesitate to contact the office and we will assist you. 973-983-7429

    Thank you!

    Lisa Salberg
    Founder and CEO
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: BIG CHANGES COMING to the HCMA website and message board!

    Thanks for the update, Lisa. Sounds like the site will be going through a myectomy of sorts. Looking forward to seeing the new and improved!
    Diagnosed with HCM in 1992
    Myectomy at Johns Hopkins in April 2013


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