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Policy: Last Names


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Lisa Salberg Find out more about Lisa Salberg
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  • Policy: Last Names

    Dear Message Board users,

    In the introduction to the board we ask that you NOT use your full first and last name as a screen name and some of you have followed this suggestion and we have edited some screen names for your own privacy protection. However as the board grows it is not always possible for us to catch the names you use and edit them. If you are using a full first and last name as a screen name we highly recommend you email the HCMA at [email protected] to change your name to first name and last initial if that name is taken please use numbers of middle initial to make it unique.

    Further, many of us are in the habit of signing letters with our full name. Please DO NOT USE your full name anywhere on the board as it will be searchable. The only area of the HCMA message board that is NOT searchable is the genetics area. The remainder of the board is searchable by any search engine - and frankly that is how many of you have found it.

    Our moderators have been instructed to remove last names from postings from this point on. However I have to say the HCMA is NOT responsible if you post your full name and someone you did not want to know about your health status is to stumble on the post.

    In summary:
    Please do not use last names on the message board at any time to ensure your own privacy.

    Lisa Salberg
    Last edited by Lisa Salberg; 09-25-2009, 10:05 AM. Reason: I gave incorrect information... opps
    Knowledge is power ... Stay informed!
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    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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