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Cleveland Clinic Mar 2 - ???

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About the Author

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carolinaviking Diagnosed with HOCM in 2001 Asymptomatic until 2012 - BP started dropping during exercise onset - nearly fainting Nov 2014 - Initial onset of a-fib w/RVR and it is now a regular companion Amiodarone 200 mg twice/day Metoprolol 50 mg twice/day Xarelto 20 mg Find out more about carolinaviking
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  • #16
    Re: Cleveland Clinic Mar 2 - ???

    Best of luck to all of you headed to or already in Cleveland this coming week..... Darlene, Dave, Snowflake....
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

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    • #17
      Re: Cleveland Clinic Mar 2 - ???

      What a group. Sounds like riot in Cell Block #5! Good luck to all y'all and watch out for that Polar Vortex nonsense.
      Angus Campbell
      Golden Isles Region, Southeast Georgia, USA

      Dx'd HOCM at St Luke's Roosevelt, New York City, 2005
      Myectomy Jan 9th 2014 at Cleveland Clinic
      Drs Lever and Smedira

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      • #18
        Re: Cleveland Clinic Mar 2 - ???

        Yep, tomorrow begins the poking and prodding for Carolina Viking. I just wait around with the huge binder of paperwork and imagibg, and crochet stuff. I have the easy part.

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        • #19
          Re: Cleveland Clinic Mar 2 - ???

          Glad you both made it there safely. I hope the weather is OK. It's snowing here in central PA. We will get to our hotel tomorrow night but not go to J building until Tuesday.

          There will be another HCMA member there, too, but he doesn't post much on the forums. I've been talking with him through private messages. If I recall correctly (my memory is fuzzy) he's going there today to get checked in. He's having surgery the same day I am. We could have a little "Big Hearts" party!!!! We'll have to get a picture of all of us to share.

          I'm looking forward to meeting you, not a specialsnowflake & carolinaviking!
          At least 5 years of symptoms.
          07/24/14: Age 45, diagnosed with HCM w/ obstruction.
          09/30/14: Tested at Cleveland Clinic (Ohio).
          January 2015: Approved for surgery.
          03/05/15: Pending myectomy & possible mitral valve replacement at Cleveland Clinic

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          • #20
            Re: Cleveland Clinic Mar 2 - ???

            Best to the entire bunch of you.....see ya on the other side of all of this.

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