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Headed to Mayo in October

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Redteamer Find out more about Redteamer
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  • #31
    Re: Headed to Mayo in October

    Discharged! Mellowing in hotel before the flight home Thursday.


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    Joel

    Born 1955 in USA, DX'd w/HCM 1996, in United Kingdom
    2011, 2013, 2014 ablations for Afib and flutter in UK, INOVA Fairfax, VA, and Johns Hopkins
    June 2014 DX HOCM at Johns Hopkins
    October 2014 Myectomy and Cryomaze at Mayo Clinic

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    • #32
      Re: Headed to Mayo in October

      YIPPEE !! Let the healing begin! Also - I suggest not visiting the duplex movie theatre in town. Never been to a theatre that had a sign that read - No Firearms Allowed.
      When did this get to be a problem?

      If the weather seems too cold (or slippery) to continue your 3X daily walks, take the shuttle to the main clinic and walk underground there.
      Marc
      Diagnosed @ 48
      Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
      Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
      AICD - Valentines Day '08, Spark Plug replaced 11/14
      After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
      Quietly going insane . . .

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      • #33
        Re: Headed to Mayo in October

        Congratulations! Here's hoping for a smooth recovery!

        Gordon
        Myectomy on Feb. 5, 2007.

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        • #34
          Re: Headed to Mayo in October

          Hi team. We are home and recovering. No heart issues at all but some stress relate headaches yesterday. So good to be here. Hartzell Schaff may be the most skilled heart surgeon out there and his team at Mayo is the best. Everyone we dealt with there was dedicated to getting us healed - they love their patients. I read the report of the surgery, Myectomy and Cryomaze, and although much of it was over my head, it is still amazing. Next week I'll start rehab. Walks have been regular and I've been able to sleep upstairs and live downstairs. The trip home Thursday was arduous, very hard on my wife, but we made it thanks to lots of help from friends.


          Sent from my iPad using Tapatalk
          Joel

          Born 1955 in USA, DX'd w/HCM 1996, in United Kingdom
          2011, 2013, 2014 ablations for Afib and flutter in UK, INOVA Fairfax, VA, and Johns Hopkins
          June 2014 DX HOCM at Johns Hopkins
          October 2014 Myectomy and Cryomaze at Mayo Clinic

          Comment


          • #35
            Re: Headed to Mayo in October

            Hope you have a very smooth recovery!
            Diagnosed with HCM in 1992
            Myectomy at Johns Hopkins in April 2013

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            • #36
              Re: Headed to Mayo in October

              Thanks for taking the time to let us know you are home and doing well, So happy for you. I believe that the " heartfull" passion on which the Mayo brothers built their clinic pervades the entire facility and the city it was built in. The ability to make each of us feel cared for while practicing medicine with the utmost skill and efficiency....is amazing.
              After years of symptoms:
              Officially Diagnosed HOCM 2006
              Myectomy 3/11/13 at non-COE
              Extended Myectomy 7/23/14
              At Mayo with Dr. Joseph Dearani

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              • #37
                Re: Headed to Mayo in October

                Glad you are home safe. Yes, the trip is always harder on the spouse. Aren't we so lucky?? Keep moving around but don't reach too far. Time will get you in the groove and then you will rock. Godspeed.
                Angus Campbell
                Golden Isles Region, Southeast Georgia, USA

                Dx'd HOCM at St Luke's Roosevelt, New York City, 2005
                Myectomy Jan 9th 2014 at Cleveland Clinic
                Drs Lever and Smedira

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                • #38
                  Re: Headed to Mayo in October

                  Glad you are home and doing well. I hope you are soon able to do all of the things that HCM has been keeping you from doing.
                  At least 5 years of symptoms.
                  07/24/14: Age 45, diagnosed with HCM w/ obstruction.
                  09/30/14: Tested at Cleveland Clinic (Ohio).
                  January 2015: Approved for surgery.
                  03/05/15: Pending myectomy & possible mitral valve replacement at Cleveland Clinic

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                  • #39
                    Re: Headed to Mayo in October

                    Your account of your surgery and recover has been invaluable to me. My husband will be undergoing a myectomy at some point and it helps so much to hear reports of those who have already been through it.

                    We live in Israel and Dr. Schaff has a collaboration with a hospital here. We are doing Norpace for now and hoping that Dr. Schaff will plan a trip to Israel at some point so dh can have him as a surgeon. If not, he'll be operated on by the local surgeon trained by Dr. Schaff.
                    Last edited by galileegirl; 10-28-2014, 11:26 AM.

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                    • #40
                      Re: Headed to Mayo in October

                      Galileegirl- my best wishes to you and your husband. I'm sure Dr Schaff or a protégé will take good care of you.


                      Sent from my iPhone using Tapatalk
                      Joel

                      Born 1955 in USA, DX'd w/HCM 1996, in United Kingdom
                      2011, 2013, 2014 ablations for Afib and flutter in UK, INOVA Fairfax, VA, and Johns Hopkins
                      June 2014 DX HOCM at Johns Hopkins
                      October 2014 Myectomy and Cryomaze at Mayo Clinic

                      Comment

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