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Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
Steve and Beverly,
Prayers of healing, strength, and peace to you and your family. Thanks for updating us.
Theresa
Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.
Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.
Steve and Bev,
Just wanted to say you and your family are in my thoughts and prayers. I hope all is going well and moving in the right direction.
Best wishes,
Lisa
Knowledge is power ... Stay informed!
YOU can make a difference - all you have to do is try!
Dx age 12 current age 46 and counting!
lost: 5 family members to HCM (SCD, Stroke, CHF)
Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
Therapy - ICD (implanted 97, 01, 04 and 11, medication
Currently not obstructed
Complications - unnecessary pacemaker and stroke (unrelated to each other)
49 yrs. old
Diagnosed at 31.
Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
My brother passed away suddenly at 34 yrs old from HCM.
2 teenage children, ages 17 and 15.
I am also keeping Beverly in my thoughts and prayers.
~Neenee~
Diagnosed in 2000 at age 47 with IHSS/HOCM. Father died at age 42 in 1975, official diagnosis cardial infarction
Feb. 20, 2007 - Septal Myectomy & Mitral Valve repair Feb. 24th 2007- dual pacemaker/ICD implant.
Jan. 21, 2009 - surgery to replace fractured lead ( Guidant)
Jan. 27, 2009 - inappropriate shock from defib. back into hosp. for another lead replacement ( St. Jude).
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