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LizCarpenter Find out more about LizCarpenter
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  • Rejection

    My last 3 biopsies were all 0... YEA!!
    I am to have my annual biopsy Wed. the 14th...
    I get scared every time I have to go in for a biopsy... I am scared that I will be in rejection? Is this normal? I pray and pray every time that Lindsay will be safe there inside my chest... but I am so scared that I will be in some kind of rejection???

  • #2
    I would think it's absolutely normal to have fear each time you have the biopsies done. I'll pray you get another big fat 0 under your belt!

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Here is hoping for another ZERO. Prayers to lessen your fears.

      Pam
      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

      Comment


      • #4
        Yes, it is normal to fear that you will reject. I have had 2 episodes of rejection but they bring you right out of it with med changes. Everyone says oh I bet you dread biopsies but really it is nice to know all is okay. I will keep you in my prayers. Let us know how it goes. Hoping for a 0.
        Midge

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.

        Comment


        • #5
          Thanks

          Thanks for all the words of encouragement... I know that it can be fixed with meds... I have been through 2 episodes of rejection. I got a 3A twice in a row!!! I just hate being in rejection. I HATE the steriods. I get extremely puffy... moon face... and my joints ache. So I guess that is why I get so scared.
          I also wanted to let everyone know that I have been released to go back to work... so I got a job working with MORA... Mississippi Ogan Recovery Agency.
          I am answering phones right now but I am hoping that I can train to recover organs. It may take me some time to get started but that is what I am planning on doing.
          Kadie is still waiting but as soon as she gets a heart I will post and let everyone know. She asked me the other day to excercise with her when she gets better. It did my heart good to hear that!!!

          Comment


          • #6
            Im totally with you on being nervous for every biopsy. I have 2 more biopsys until my first annual and I am really excited. I had early rejection a few 3A's so, i know how you feel. I have had a string of 0's and 1A's for a few months now, but i still get that pit in my stomach waiting for that call. I just dont want to be readmitted into the hospital..Im thinking about you..
            Proud Heart Transplant Recipient - November 6, 2004.

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            • #7
              Guess What

              God has once again answered my prayers and gave me a zero.

              Lindsay you are still safe inside... beat on sister!!!

              Comment


              • #8
                Liz

                CONGRADULATIONS!!!!!!!!!!!!!!!!!!!!!!!!!!!! on another 0


                Shirley
                Diagnosed 2003
                Myectomy 2-23-2004
                Husband: Ken
                Son: John diagnosed 2004
                Daughter: Janet (free of HCM)

                Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                Comment


                • #9
                  Yay!!!
                  Reenie

                  ****************
                  Husband has HCM.
                  3 kids - ages 23, 21, & 19. All presently clear of HCM.

                  Comment


                  • #10
                    Awesome. My husband says he wants a bumper sticker that reads "My wife is a 0" Only a certain # of people in the world would understand that for us that is the best.
                    Midge

                    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                    ICD&Pacemaker 1996
                    Heart transplant March 19, 2004 @ Mayo Rochester
                    Mom of Kaye.

                    Comment


                    • #11
                      Awesome news liz

                      Midge - I love the bumber sticker idea

                      John
                      41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005

                      Comment


                      • #12
                        Wonderfull news Liz...Way to go!!!

                        Pam
                        Dx @ 47 with HOCM & HF:11/00
                        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                        Lead failure,replaced 12/06.
                        SF lead recall:07,extracted leads and new device 2012
                        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                        Genetic mutation 4/09, mother(d), brother, son, gene+
                        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

                        Comment


                        • #13
                          Love the bumper sticker

                          My dad tells people I am a zero... then he explains... I think the bumper sticker would be cool!!!!!!!

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