If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Transplant

Collapse

About the Author

Collapse

Aimee Find out more about Aimee
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Transplant

    Just to let you know my status will be moved up on the transplant list. from a 2 to a 1a for the week and renegotiated each week. I will then fall only to a 1b. I know my heart is coming soon.
    Ag

  • #2
    Dear Aimee

    Hi Aimee, I know this is a time of mixed emotions. I am 7 years post transplant and I can remember having my status changed from a 2 to a 1a. Back then to be 1a we needed to be in the hospital, a 1b you were at home. No matter where you wait it is still a very scary time, and yet you find yourself getting just a little excited that maybe soon you will have your new heart. The best thing I can tell you is no matter what keep a positive attitude and try to laugh at least once a day.Laughter is truly the best medicine. I was lucky I only waited a week in the hospital as a 1a and out 21 days later. The wait is the hardest!!! You are in my thoughts and prayers, if you need anything I'm only an e-mail away


    Karen
    Karen Cicconetti
    Heart Transplant 1998
    Don\'t take your organs to heaven
    Heaven knows we need them here

    Comment


    • #3
      I am so excited for you. Yes, it is scary but as Karen says exciting. I never was a 1 A but was a 1B waiting at home. You are right it will be soon. I will keep you in my prayers.
      Midge

      Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
      ICD&Pacemaker 1996
      Heart transplant March 19, 2004 @ Mayo Rochester
      Mom of Kaye.

      Comment


      • #4
        Aimee,

        This must be filling you with mixed emotions. I am hoping and and praying that everthing goes your way!

        Take care,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Aimee,

          It is in our prayers that a new heart for Aimee to comes soon.


          Stuart & Barbara
          Cleveland Myectomy Club
          August 31, 2004

          Comment


          • #6
            Aimee,

            Thoughts and prayers, hoping you soon hear.

            Pam
            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

            Comment

            Today's Birthdays

            Collapse

            Working...
            X