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Find out more about Aimee
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  • Transplant

    Just to let you know my status will be moved up on the transplant list. from a 2 to a 1a for the week and renegotiated each week. I will then fall only to a 1b. I know my heart is coming soon.

  • #2
    Dear Aimee

    Hi Aimee, I know this is a time of mixed emotions. I am 7 years post transplant and I can remember having my status changed from a 2 to a 1a. Back then to be 1a we needed to be in the hospital, a 1b you were at home. No matter where you wait it is still a very scary time, and yet you find yourself getting just a little excited that maybe soon you will have your new heart. The best thing I can tell you is no matter what keep a positive attitude and try to laugh at least once a day.Laughter is truly the best medicine. I was lucky I only waited a week in the hospital as a 1a and out 21 days later. The wait is the hardest!!! You are in my thoughts and prayers, if you need anything I'm only an e-mail away

    Karen Cicconetti
    Heart Transplant 1998
    Don\'t take your organs to heaven
    Heaven knows we need them here


    • #3
      I am so excited for you. Yes, it is scary but as Karen says exciting. I never was a 1 A but was a 1B waiting at home. You are right it will be soon. I will keep you in my prayers.

      Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
      ICD&Pacemaker 1996
      Heart transplant March 19, 2004 @ Mayo Rochester
      Mom of Kaye.


      • #4

        This must be filling you with mixed emotions. I am hoping and and praying that everthing goes your way!

        Take care,
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        • #5

          It is in our prayers that a new heart for Aimee to comes soon.

          Stuart & Barbara
          Cleveland Myectomy Club
          August 31, 2004


          • #6

            Thoughts and prayers, hoping you soon hear.

            Dx @ 47 with HOCM & HF:11/00
            Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
            Lead failure,replaced 12/06.
            SF lead recall:07,extracted leads and new device 2012
            [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
            Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
            Genetic mutation 4/09, mother(d), brother, son, gene+
            Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


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