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Hi all,
Well let me first say the HCMA meeting was great and very informative. I really enjoyed it.
Well here comes the hurdle. In the late 90s I started having a lot of migraine headaches and I had a ct scan done and they found a calcified benign tumor. They said it was very tiny and to just have a ct scan to make sure it doesn't grow about every two years. It's a mengioma they call it. Well a few days ago I went to a neurologist he set up an eeg and I have to stay awake for 24 hours and they are going to check my brain waves. I am having my mom drive me since I won't be having any sleep the day before and just to be cautious. This test won't be run till July 5th.
The transplant board of docs suggested I have it and then in a couple of weeks I will have a cat scan just to make sure everything is ok. I guess they did a transplant on a woman one time that had a mengioma and it had grown and she had seizures after transplant.
I am sure I have nothing to worry about. I guess I just worry sometimes. We all have a lot to deal with us who are waiting for transplant but I am remembering I am a heart warrior and thinking about the good people, my family,friends and HCMA friends I have. Thanks for letting me vent.
Well let me first say the HCMA meeting was great and very informative. I really enjoyed it.
Well here comes the hurdle. In the late 90s I started having a lot of migraine headaches and I had a ct scan done and they found a calcified benign tumor. They said it was very tiny and to just have a ct scan to make sure it doesn't grow about every two years. It's a mengioma they call it. Well a few days ago I went to a neurologist he set up an eeg and I have to stay awake for 24 hours and they are going to check my brain waves. I am having my mom drive me since I won't be having any sleep the day before and just to be cautious. This test won't be run till July 5th.
The transplant board of docs suggested I have it and then in a couple of weeks I will have a cat scan just to make sure everything is ok. I guess they did a transplant on a woman one time that had a mengioma and it had grown and she had seizures after transplant.
I am sure I have nothing to worry about. I guess I just worry sometimes. We all have a lot to deal with us who are waiting for transplant but I am remembering I am a heart warrior and thinking about the good people, my family,friends and HCMA friends I have. Thanks for letting me vent.
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