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Another hurdle for me


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  • Another hurdle for me

    Hi all,
    Well let me first say the HCMA meeting was great and very informative. I really enjoyed it.
    Well here comes the hurdle. In the late 90s I started having a lot of migraine headaches and I had a ct scan done and they found a calcified benign tumor. They said it was very tiny and to just have a ct scan to make sure it doesn't grow about every two years. It's a mengioma they call it. Well a few days ago I went to a neurologist he set up an eeg and I have to stay awake for 24 hours and they are going to check my brain waves. I am having my mom drive me since I won't be having any sleep the day before and just to be cautious. This test won't be run till July 5th.
    The transplant board of docs suggested I have it and then in a couple of weeks I will have a cat scan just to make sure everything is ok. I guess they did a transplant on a woman one time that had a mengioma and it had grown and she had seizures after transplant.
    I am sure I have nothing to worry about. I guess I just worry sometimes. We all have a lot to deal with us who are waiting for transplant but I am remembering I am a heart warrior and thinking about the good people, my family,friends and HCMA friends I have. Thanks for letting me vent.
    Kimberly K. Plaster

  • #2
    Kim, I really hope all the tests turn out all right and there isn't any more to worry about.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3

      I hope all goes well with your upcoming tests. I'm sure eveything will be fine. Sounds like you have had a ton to deal with. Sometimes I think God throws all the crazy stuff to the toughest of the bunch to help teach others how great they have things.

      Wishing you the best!

      41 years old. Diagnosed with HOCM in Feb 2005. Myectomy at Mayo on June 8, 2005


      • #4

        You will be in my thoughts and prayers

        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


        • #5
          Kim, Best wishes with the upcoming tests. I'll be thinking of you. Linda


          • #6
            Kim, I will send positive thoughts and prayers your way. Your attitude is great. I know that you are not traveling an easy path. Keep us posted. You can vent here anytime.

            Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
            ICD&Pacemaker 1996
            Heart transplant March 19, 2004 @ Mayo Rochester
            Mom of Kaye.


            • #7
              Kimberly ,

              Positive thoughts for a great outcome and report. You are in my prayers.

              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


              • #8
                Wow Kim, you obviously don't need to be dealing with this right now. I can only pray that your things will be ok and that the tumour will Try and stay positive. Your tumor may not be a problem at all.

                Take care and please keep us posted on how you are doing.
                Age 38, dad of two young children, dx 1996, myectomy March 2005, a-fib issues, due for ICD soon.


                • #9

                  Our best to you in your upcoming test.

                  We all have a lot to deal with from time to time. It is in those times that we are all here for each other.

                  And now we are here for you.

                  Wishing you the best..

                  Cleveland Myectomy Club
                  August 31, 2004


                  • #10

                    Let me first Say it was a pleasure to have met you at the HCM meeting. You are in my thoughts and prayers as you tackle this hurdle. Just by speaking with you at the meeting I know you have a very positive attitude. Stay Strong and keep us informed.

                    Karen Cicconetti
                    Heart Transplant 1998
                    Don\'t take your organs to heaven
                    Heaven knows we need them here


                    • #11
                      Thinking about you Kim,

                      You will get through this and get everything you deserve.

                      Mary S.