Goodness, what a day it has been today! (I'm being slightly sarcastic here; I don't know how else to deal with it other than trying to be amusing.)
As I was laying on the table, having my echo, Dr. Maron walked in and chatted a bit. I asked him how the HCMA conference was, and he said it was fine, and oh, did I know that the HCMA president, Lisa, was standing outside the room? I said, "Send her in so I can say hello!"
Next thing I know, there's Lisa and Kelly, watching my long, floppy thing (i.e., a very unusual valve leaflet) on the screen. Lisa took some pictures for prosperity, chatted a bit, and then had to leave.
(It was nice to briefly meet you two! And what a funny coincidence it was!)
Anyway, to make a long story short, I had some more evaluation done today, and the conclusion is two-fold: 1) I'm going to have an ICD; and 2) I've reached the burnout stage and will start the process of getting on the transplant list.
To say that I'm shocked is an understatement. I mean, I know I've become more symptomatic with the AF and such, but as far as the HCM itself goes, my numbers aren't all that bad and I'm not obstructed. The fibrosis of the ventricles, however, totally came out of left field, and that seems to be of great concern.
At this point, I don't know what to think. I certainly didn't expect to hear this news.
I'm sure I'll write more about this soon, but I just wanted to get it out now.
-- Tim
As I was laying on the table, having my echo, Dr. Maron walked in and chatted a bit. I asked him how the HCMA conference was, and he said it was fine, and oh, did I know that the HCMA president, Lisa, was standing outside the room? I said, "Send her in so I can say hello!"
Next thing I know, there's Lisa and Kelly, watching my long, floppy thing (i.e., a very unusual valve leaflet) on the screen. Lisa took some pictures for prosperity, chatted a bit, and then had to leave.
(It was nice to briefly meet you two! And what a funny coincidence it was!)
Anyway, to make a long story short, I had some more evaluation done today, and the conclusion is two-fold: 1) I'm going to have an ICD; and 2) I've reached the burnout stage and will start the process of getting on the transplant list.
To say that I'm shocked is an understatement. I mean, I know I've become more symptomatic with the AF and such, but as far as the HCM itself goes, my numbers aren't all that bad and I'm not obstructed. The fibrosis of the ventricles, however, totally came out of left field, and that seems to be of great concern.
At this point, I don't know what to think. I certainly didn't expect to hear this news.
I'm sure I'll write more about this soon, but I just wanted to get it out now.
-- Tim
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