If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Meeting donor family

Collapse

About the Author

Collapse

Midge Rollins Heart transplant March 04. Prior to that I had Hypertrophic Cardiomyopathy. I am an independent Norwex consultant. Visit my web site www.midgerollins.norwex.biz Find out more about Midge Rollins
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Meeting donor family

    Saturday, my husband and I met with my donors mom and extended family. An experience that will be with me forever. It was emotional but went so well. It was like meeting family. They were the most gracious, caring people. They told me it was healing for them to meet me. For me it was healing, as well as rewarding to meet these folks. I loved hearing David stories and it makes me feel more connected to my heart. Just wanted to share this all of you. I know not everyone on the donor side as well as recipient side chooses to meet but in my case it was what we both wanted and we felt God had led us to this point.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

  • #2
    I'm glad you had such a positive experience.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      wow

      what an amazing thing. i wish more people would sign their driver's license and donate.

      thanks for telling us about it, Midge.

      hugs,

      s

      Comment


      • #4
        Midge, How wonderful. I am so glad that you had the chance to meet them and share how much it has meant to you, and get to know them. Thanks for letting us know, Lisa I.

        Comment


        • #5
          Midge

          it is so wonderful that you got the experience to meet the donor family and learn about him

          Shirley
          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

          Comment


          • #6
            transplants - Pre and Post

            What a wonderful, touching event. I'm very happy for you.

            Signing your drivers liscense to be a doner is not the final say in donation of organs. Your family has the final decision. You need to let your family know you want to do it as well. You need to education your family that is what you want, not just sign your drivers license. Very important. I too have signed my drivers liscense to be a donor but I also need to let my family know so they honor my wishes.

            Just thought people should know this. It is very frustrating for nursing staff when a person's family doesn't know if they should donate the organs or not because the patient never discussed it with them. It helps the family make that decision if the patient signed their drivers liscense for donation.
            Michelle - mom to Krista and Tyler both HCM
            Krista surgeries: 3/97 myectomy, 2/99 mitral valve replacement
            Tyler surgery: 1/98 myectomy

            Comment


            • #7
              As a donor family I would like to meet the 2 living recipients of my sisters kidneys - they have choosen not to meet us. I respect that.
              I am very glad you had a positive experience and that Davids family did as well.
              Best wishes,
              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment


              • #8
                That's so great. I am glad you got to meet them and hear stories about the donor.
                Kimberly K. Plaster

                Comment


                • #9
                  meeting donor family

                  That's wonderful Midge that you were able to meet your donor's family. It must have been an incredible experience. I can understand when you say that it was like meeting family. Donor families are very special people and they are part of you just like family.

                  My husband will be 3 months out of transplant. I think about our donor and his family every day. Maybe one day we will get that opportunity as well. Take care and stay well.

                  Karen

                  Comment

                  Today's Birthdays

                  Collapse

                  Working...
                  X