If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Organ Donor increase

Collapse

About the Author

Collapse

Midge Rollins Heart transplant March 04. Prior to that I had Hypertrophic Cardiomyopathy. I am an independent Norwex consultant. Visit my web site www.midgerollins.norwex.biz Find out more about Midge Rollins
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Organ Donor increase

    According to USA Today, nearly 27,000 Americans received an organ tranosplant last year. That is a new national record. Over 20,000 of these used organs from 7,000 deceased donors. They say it is an 11% increase from 2003. I hope I can encourage those of you waiting for a heart or anyone else who is interested to volunteer for your local OPO (Organ Procurement Organization) and speak or volunteer at health fairs to get the word out. Personal stories are the greatest incentive to have people sign up to be donors. In April I am going to St. Paul to a conference put on by Transplant Speakers International. My goal some day is to volunteer for them. So, for those of you waiting for a heart it is encouraging news that there is an increase of people signing up to be donors. Have patience and it will come. God Bless.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

  • #2
    Thank you Midge - It is nice to see more transplants being done - just think of how many more their would be if more people understood the process better.

    Education is the key!

    Best wishes,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Midge

      that is great news!!!!! now if i can just get on the list maybe i can get one and stop all this being sooo tired all the time, you know i have my dad here now and honestly i don't know how i do it, but i have noticed a change in chest pain and getting lightheaded, i can't believe my 4 brothers can't take him but i can't turn him away he is my dad and he is in bad health too, my sister and my family help when they can but alot of times i'm left with him alone during the day, and he expects me to fix him lunch and i get up and do it he can't even make up his pills anymore he gets confused, i showed my sister how to make his pills up just in case i go into the hospital, i refuse to put him in a home, i promised him years ago that i wouldn't , well i guess the doctor here has talked to Dr.Maron but he has not called me yet to discuss what they said and Dr. Maron also sent him papers by fax so hopefully they will do something soon. You take care and i hope you had a great Easter

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment


      • #4
        I was at my transplant docs office today deciding wether I needed a tune up or not and I voted and he agreed to give me one more day at home to try to get the extra fluid off and then it's admitted for a few days. But while I was there they said they alone did 42 heart transplants last year. WHHHHOOOOOOO!!!!! I'll get mine yet and hopefully soon. I can't wait to get into the scene and teach people what it's all about to donate.

        Yeah!

        Beverly

        Comment

        Today's Birthdays

        Collapse

        Working...
        X