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Article about Lisa's Transplant

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I am Darlene I had symptoms for at least 5 years that I now know were from HCM. My PCP didn't know why I was having symptoms. I changed doctors in 2014 for a "new perspective." After some misdiagnoses (high blood pressure, bronchitis, asthma) the new doctor sent me for an echo when she detected a heart murmur after several appointments with her. An echocardiogram in July 2014 showed I had HCM with obstruction. The cardiologist that my PCP referred me to wasn't experienced with HCM. After much frustration, I found a cardiologist with experience with HCM and am so glad I found him. I also see Dr. Thamilarasan at Cleveland Clinic. My obstruction is unusual in that it's my papillary muscle that's enlarged and causing the obstruction (which makes me cough A LOT!). My septum is only slightly enlarged. It was also discovered during the cardiac cath that I have a rare type of anomalous coronary artery. I always knew I was special on the inside. . . but not in this way. LOL!!!! Find out more about I am Darlene
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  • Article about Lisa's Transplant

    I haven't logged in for a long time. My health has been up and down since I last posted. I just saw an article about Lisa's recent heart transplant and wondered if you all saw it. I guess this is the right section to put this in???

    https://www.yahoo.com/gma/transplant...opstories.html

    Way to go, Lisa. Best wishes to you!
    At least 5 years of symptoms.
    07/24/14: Age 45, diagnosed with HCM w/ obstruction.
    09/30/14: Tested at Cleveland Clinic (Ohio).
    January 2015: Approved for surgery.
    03/05/15: Pending myectomy & possible mitral valve replacement at Cleveland Clinic

  • #2
    Thank you for sharing this article Darlene! Lisa, thank you for all that you have done for us in the HCM world. We don't know where we would be without you! You have truly made a difference in our lives. All the best to you as you recover

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