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I'm being placed on the transplant list

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Michael-medic I've been with my domestic partner for 12 years. Ed is a Resident in Plastic Surgery. Find out more about Michael-medic
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  • I'm being placed on the transplant list

    Hi,
    The transplant team at Columbia Presbyterian advised me they are placing me on the transplant list. I spent all of Monday getting scanned and poked. Next week I go back to meet with the surgeons, psychiatrist, financial advisors and social workers. They will give me a final approval in the coming weeks.
    I've been attending twice monthly support group meetings at CP for the last 16 months. It's been helpful meeting others who are faced with the same challenges. So patients have made remarkable recoveries. One woman in particular rides her bicycle 15 miles round trip to her follow up clinic appts.
    My symptoms started 11 years ago. With each passing year I've been declining. But I still can't believe this is happening.
    Dx with HCM November 2009
    Myectomy and Mitral Valve Repair @Tuft's March 2010

  • #2
    Mike - Sorry to hear things progressed this far, but glad your proactive in your care. Lets hope for quick approval & even quicker wait time.
    Marc
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .

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    • #3
      I know you've had a long and trying road; I'm sorry that things have got to this point, but I'm glad they're going to list you.
      Myectomy on Feb. 5, 2007.

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