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heather Find out more about heather
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  • mbcube
    replied
    Heather - Hope things continue to improve. Looking forward to your posts as a non-HCM'r !

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  • cynthiaG
    replied
    OMG!! that is fantastic! Sooo happy for you, Heather! you can email me anytime with any question or just to chat....wonderful! P.S. be patient...it is a ways to recovery completely. You will be feeling great!!

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  • Tim West
    replied
    That's great news.Here's hoping she continues to improve.

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  • Cynaburst
    replied
    Heather continues to improve. She is now out of ICU and walking around the floor of her step down unit. She will probably be back posting here soon. She will have to stay in Dallas near Baylor for 3 months before she returns home.

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  • JillC
    replied
    Thanks Cynthia.... Will be holding her and her family in the light. If you hear how she is doing please let us know......that was really quick to get a heart what center is she at?

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  • Cynaburst
    replied
    Just letting everyone know that Heather is in surgery right now getting her heart transplant. Please keep her in your thoughts and prayers.

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  • maztbo
    replied
    Congrats Heather Hope it happens sooner than later

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  • mbcube
    replied
    Heather - I was on an extended vacation & missed the news. Congrats! hope your wait is a short one.

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  • cynthiaG
    replied
    P.S. Milrinone made me so sick..was so glad when that pic line was removed!!

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  • cynthiaG
    replied
    OMG, Heather! how wonderful! that's my blood type, AB+...the best you can have because it is a universal recipient!! Don't worry...you will be in great hands...I will say prayers for you!

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  • LindaSo
    replied
    Hope the time goes by quickly Heather. I know you will keep us posted.

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  • gfox42
    replied
    Hi Heather,
    Here's hoping you get a new heart soon! I know it's been quite a haul for you!
    Gordon

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  • JillC
    replied
    Congratulations Heather! This is probably a most wonderful yet scary experience to prepare yourself for a heart transplant! I'm sure there are forums like HCMA that you can get involved in that are specific for heart transplant and support you through the process.....but keep us posted too.

    A call out: Has anyone heard from John/Matzbo who was moving to Texas to get listed for transplant? Wherever you are John...Hope it is going well you have suffered a long time and now hopefully you are in a much shorter line for a new heart. Blessings .

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  • heather
    started a topic I'm listed!

    I'm listed!

    I wanted to let everyone know that I am officially listed for a heart transplant, status 1b. So, I am waiting at home. I was just listed on Thursday and it took a little while due to the drs. being unsure about my lung pressures being too high. I saw the dr. for the first time in June and he was like "ya, no problem. you should be easy to get on the list." So, I made an apt in July for a week of testing. They sent me home on Milrinone.and I had an echo in August that showed my pressures had dropped 15 pts. So, my dr. started me on Sildenafil 20mg/3 times a day. I started feeling really bad, SOB, my ankles were swelling, which I have all my swelling in my stomach, dizzy, just off! So, my dr. had me come back to Dallas for another right heart cath. It showed very little change in the pressures.. I was so upset. I just knew they were going to tell me to go home and spend the time I had left. They tried a Nipride drip and within an hour my lung pressures had dropped to normal. So, Thursday, my dr. came in after their transplant committee mtg. which I didn't think they would talk about me until the next week, and he said "well congratulations, you're listed" and went on to explain that since the pressures responded so well to the iv of the nipride, that it would reverse with a new heart. So, to go home, pack a bag, and get ready! .He said 1b usually wait 2wks-month and with me being A+ blood type, it probably wouldn't be long. So that's the story for now! I'm excited but very nervous!

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