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cynthiaG Find out more about cynthiaG
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  • PICC Line problem

    for those of you who were home on a PICC line (with Milrinone), did you ever have problems with it getting clogged? We ended up having to drive into Boston at midnight last night, AGAIN , related to the PICC line, had a new one put in this past Monday. Anyway, the doctor in the ER had the nurse give me a small syringe (TAP??) which unclots any small clots that were formed. They finally got both lumens to flush and work. Came home at 5:45 this morning. waiting for an answer as to why this keeps happening and if the VNA nurse can use heparin....SICK OF THIS !!
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: PICC Line problem

    Cynthia --

    Frustration is the name of the game when it comes to HCM.

    You seem to be doing the best and everything you can so you will definitely come through this fine (just a little wear and tear).

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    • #3
      Re: PICC Line problem

      Push for the Home Care Nurse to have the equipment/supplies she needs to problem solve at home. I understand the frustration, but the alternative right now is worse. Hang in there, I think you are coping as best as anyone else could in a similar situation.
      Onward and Upward !

      Diagnosed 4/07 HCM with fixed & dynamic obstruction
      Myectomy with resected cordonae tendonae 4/08 CCF
      ICD 10/08

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      • #4
        Re: PICC Line problem

        thanks, Linda.....they are sending me some syringes of heparin .....VNA nurse and my doctor just called to let me know...this thing is frustrating and trying my best to hang in there
        \"It is not length of life, but depth of life.\"

        Ralph Waldo Emerson

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        • #5
          Re: PICC Line problem

          Is a port an option? While I had alot of issues with mine (I am an exception but aren't I always) but it is alot more easier to deal with. You don't have to keep it in and is easier to start than an IV much less a PICC. Power ports even allow CTs. Only gotta be flushed once a month. If I ever have to be on IV meds again I'm sure I will get #5.

          Mary

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          • #6
            Re: PICC Line problem

            I am sorry that I didn't notice this post earlier. I was a home care nurse for years and took care of many PICCs and ports. I am PICC certified, which means I can also put them in and remove them. Inserting them in the home is not often done because they require an x-ray to be sure the line is where it's supposed to be. I am licensed in PA & MD ( or I should say I was, since I am retired). I think your home care nurse can take care of your PICC. They are frustrating, since they do clot off easily. Hang in there - I think you are coping very well considering all you've been through!

            Anne

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            • #7
              Re: PICC Line problem

              Another thing I did when I had to have a PICC after my bout of myocarditis is my PCPs office stocked up on all of the supplies so if it was Monday- Saturday I could stop and they could take care of it. Also, you should be able to call the VNA and they should be able to have a RN on call 24/7. Also, the local ER could take care of it as well. Not something I'd drive over an hour to take care of.

              Mary

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