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anyone who took milrinon via PICC line?

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cynthiaG Find out more about cynthiaG
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  • anyone who took milrinon via PICC line?

    just wondering if anyone has been sent home with a PICC line on Milrinone? can anyone tell me how they felt in general during this waiting period? saw my doctor in Boston yesterday again....i get this kid of nauceous feeling and when I drink or eat, i start (not to be gross) to spit up phlemgh. cant telll if its my stomach or upper .... put me on protonics...hope this helps. i can take this feeling
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: anyone who took milrinon via PICC line?

    Hi cynithia
    hopefully the protonic will ease the nausea, sorry I can't give you any advice with the PICC line but I found something Emily's dad wrote back in 09 (http://www.4hcm.org/forums/archive/i...p/t-14948.html) Go there or PM Emilysdad on what she experianced waiting for her transplant.

    John F
    had HCM since birth
    'enlarged heart' identified in 96'
    HOCM dx in 7/08
    Myectomy 8/09
    extended Myectomy 5/10
    'End stage' HCM dx 8/10
    CRT-D implanted 9/10
    evaluated for Transplant 11/10
    Listed for transplant 6/11

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    • #3
      Re: anyone who took milrinon via PICC line?

      thanks, john....keep in touch
      \"It is not length of life, but depth of life.\"

      Ralph Waldo Emerson

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      • #4
        Re: anyone who took milrinon via PICC line?

        I went home on the PICC with Milrinone. I had it for almost 4 months then I got my heart. I want to say that I felt better on it as far as SOB and energy then I did before. They had to increase my dose on a Wed and I got my heart that Friday. I called it my miracle drug as it kept me going until my heart came. I do not recall any tummy issues but then that was over 7 years ago and I to do this day blame any issues with my body on medicines. They can effect your GI system. Keep me posted on how you are doing.
        Midge

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.

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        • #5
          Re: anyone who took milrinon via PICC line?

          hi Midge

          Thank you for your reply. That's true....it's keeping me alive during this period. I am still waiting for lung tissue result- another 3 weeks or so....seems like an enternity.... I just want and pray to get on the list. If you dont mind me asking, did your blood type have any part in getting a heart fairly quickly? I was told some wait months or even years!
          \"It is not length of life, but depth of life.\"

          Ralph Waldo Emerson

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          • #6
            Re: anyone who took milrinon via PICC line?

            Actually, my type is O+ which is the most common and they said that the O's usually wait longer. I am also small, but they said that was in my favor as small hearts cannot go in large people as it would be able to maintain its function. So, while O+ was against me, size was for me, I still waited a total of 18 mos. Only 4 on the Milrinone. It does move you up the list.
            Midge

            Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
            ICD&Pacemaker 1996
            Heart transplant March 19, 2004 @ Mayo Rochester
            Mom of Kaye.

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            • #7
              Re: anyone who took milrinon via PICC line?

              Cynthia-
              Emily was on milrinone for the short wait she had before she received her heart. She was kept in-patient. But it was a wonder for how much better she felt on it. She has had lots of nausea problems on other drugs, but in the short while she was on milrinone, she did not have any.

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