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Next step in the journey


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MelliJ Find out more about MelliJ
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  • Next step in the journey

    Hi Everyone - just wanted to share an update....

    Well, Evan has been on the IV milrinone for 8 weeks now. Last week he had a repeat right heart cath, and it showed that his output is stable, but his lung pressures are still elevated. I spoke with his CHF doc over the weekend, and she indicated that the next step will be the LVAD. We have an appointment with her on Thursday to discuss details of what to do next. She did mention scheduling a consult with a surgeon. I've already started doing research online, and have found a few video blogs of people who are living with LVADs and doing quite well. It looks like our rollercoaster is about to really get going!

    Best Regards,


  • #2
    Re: Next step in the journey

    Glad to hear that his cardiac output is stable. I'm sorry that he will be moving toward the LVAD, but am so glad that today's technology provides that as an option. Keep us posted Melanie.
    Onward and Upward !

    Diagnosed 4/07 HCM with fixed & dynamic obstruction
    Myectomy with resected cordonae tendonae 4/08 CCF
    ICD 10/08


    • #3
      Re: Next step in the journey

      Thanks for the update - thinking of you all - Linda


      • #4
        Re: Next step in the journey

        Hi Melanie,
        I'm glad there's a next step that can be taken. Yes, keep us posted.

        Myectomy on Feb. 5, 2007.


        • #5
          Re: Next step in the journey

          Thanks for the update. Let us know.

          Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
          ICD&Pacemaker 1996
          Heart transplant March 19, 2004 @ Mayo Rochester
          Mom of Kaye.


          • #6
            Re: Next step in the journey

            Hi Melanie! Thinking of you and your husband in this next step! Is the LVAD a bridge to get to transplant? Do they think the LVAD will help get his lung pressures down? I hope you are holding up ok. Let us know how he does!
            Last edited by heather; 08-16-2011, 11:53 PM.
            Heather, 43, non-obstructive HCM, dx'd at age 14, AICD implanted 11-02, PVAI ablation done for a-fib and a-flutter 5-2010. 2nd PVAI done for a-flutter and a-tach 3-2014. 3rd PVAI for a-flutter June 2015, dr forgot to reset ICD settings and I went into vt and almost died, July 2015, July 2015-started tx work up, October 2015, put on list in Dallas and tx'd on November 14, 2015.