Transplant Final Decision

[Bob in Texas]

I want to be as humble as possible and have contemplated several days on how I would post this. To all where the transplant option is you final option and you wait in the wings for approval or have been denied, I bow my head in silence. I have been officially approved for Transplant and have been placed on the nationwide list. My insurance company at the same time approved me for an LVAD. To everybody out there HCM is a wicked disease, very complex and can move rather quickly, I am living proof. From my original diagnosis 21 months ago, I now wait on my next step in this journey.

I would like to publicly thank Dr. Martin Maron from Tuft's (Boston) for who I am totally indebted from his original diagnosis. He has supported me since my decline and even worked in conjunction with my Transplant Team here in Dallas, Texas. From the beiginning, he told me my options were very limited and my case was extremely difficult and complex. He continually suported me and most important has shown a great deal of compassion which is a rare trait.

Peace,

Bob

[Cynaburst]

Re: Transplant Final Decision

Bob - Wishing you the best of luck as you begin this journey. Will you be getting an LVAD now until you find a heart?

[mandksiders]

Re: Transplant Final Decision

Bob,
Take care. My mom has been living an extremely full life since her transplant over six years ago. I wish you the same outcome...

Kaye

[Midge Rollins]

Re: Transplant Final Decision

Bob, I know how you are feeling, scared but excited at a chance for an active life again. Please know I am here for you and please feel free to come here whenever and share your feelings.

[LindaSo]

Re: Transplant Final Decision

Bob,
Thank God for modern medicine and those who walked the HCM path before us. And especially to the brave men, women and children who died or lost a loved one and responded to the request with one word........"yes". I wish you, your family and your eventual donor and donor family nothing but lots of grace and peace as you all walk down this path.
Linda

[Largehearted]

Re: Transplant Final Decision

Bob.

Prayers for courage and peace as you walk through this next phase of HCM.

Leon

[Linda]

Re: Transplant Final Decision

Bob, difficult as this is, I somehow think you will gain a certain amount of peace as you have a definitive plan developed. It's been a long, tough journey with so many roadblocks - not just bumps for you -

Thinking of you, wishing you the best - Linda

[gfox42]

Re: Transplant Final Decision

Bob,
I'm glad things can move forward for you.

I hope the wait isn't too long; keep us posted as to how you're doing.

Gordon

[saris]

Re: Transplant Final Decision

Bob - Ive read a lot of your posts and know that you have had a very difficult time the last year or two. I often wondered how I would cope if I were in your position. I really glad to hear you are finally going to get the appropriate treatment. I wish you all the luck in the world. God be with you. Mike

[MariaB]

Re: Transplant Final Decision

Hey Bob
Thanks for the update. I'm sending you positive thoughts, energy and love. Hang in there. I know things will work out for you, Bob. You're going to be our" Male Midge" !
Keep us posted !!!!
peace
mariab

[Nellah17]

Re: Transplant Final Decision

Bob,

I know this has been a very eventful journey for you and I am so very happy to know that you have the ability to progress to this next phase.

You have always been so very strong - may God continue to strengthen you and give you peace throughout this process.

I am so very happy for you.

Nellah

[purple_ness1]

Re: Transplant Final Decision

So happy for you , i hope you get a heart soon
transplant was the best thing that ever happen to me , i still get kicks out of the little things in life

Margi

[JEDoe]

Re: Transplant Final Decision

I wish you every good thing and a VERY short wait! I have personal experience with the incredible good a transplant can do. My granddaughter, Sara, had one in March of 2009, and she is doing incredibly well, with no major difficulties at all. Adjusting to the drugs was probably the most difficult thing, but even that wasn't bad at all. She is now a Freshman at University of Connecticut, with a Biology major and plans to be a Pediatric Cardiologist!

My hope for you is that you have a similar outcome! Best of all wishes to you.

[hocmdoug]

Re: Transplant Final Decision

Bob,

Glad to hear that this is working out for you. You have been through so much. My thoughts and prayers will be with you.

[lj]

Re: Transplant Final Decision

Glad to know that a doctor is watching out for you and you have the upmost confidence and respect for Dr. M. Maron. Best of luck on your journey to a new life.
Laura