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rejection and leart my lesson


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  • rejection and leart my lesson


    hows it going ?

    i have been in hospiltil 4 the last week or so, i eneded up with severe rejection from missing my pill and yess i have learnt my lesson, just wish i had listen to what everyone was telling me insteed of haveing to learn from my mistakes
    i had a big enought of a scare this time to never do that again , im going to make some chances and stop trying to live my life "normal" like everyone else my age

    i was getting out of breath so went to doctor to get cheecke out and she sent me up to the hospiltil witch they did a byoipse and resuits come bak with severe rejection , so they gave me drugs in the I.V for a few days,
    hopefluy that I.V treatment has worked they said they wont know intill another 2 weeks when i go back for my next biopse and if it hasent there going to try a stronger drug,
    and i will know on my next byoipse if im done any damage to my heart that cant be fixed
    i hope so much i havent done any damage

    thanks everyone for trying to help me out , im just sorry i didnt listen sooner rather then later

    Forever Young

    I was diagnosedwith HCM at 6.
    Went into Atrial fibrillation so had a ICD put in at 16
    Went into Heart failure at 17
    Got a heart transplant at 21(2009)

  • #2
    Re: rejection and leart my lesson


    I hope the lesson grows deep into your being! Sorry you now face this dangerous time, but we are all pulling for you. Thanks for keeping us in the loop about what is going on.


    God Squad co-moderator
    Nothing is as gentle as strength and nothing is as strong as gentleness


    • #3
      Re: rejection and leart my lesson

      Okay whats done is done and lets look to your future now. Now you know to have a future you will take your medicines and do as the Dr. says. That was a scary lesson for you to learn and an important one. You said normal life well it is a new kind of normal for you just like me, just like anyone with HCM, diabetes, cancer etc. We all need to live with our "new" normal. Keep us posted and stay well.

      Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
      ICD&Pacemaker 1996
      Heart transplant March 19, 2004 @ Mayo Rochester
      Mom of Kaye.


      • #4
        Re: rejection and leart my lesson

        You have been given a new life, I guess it's time to become the "new" you. Wishing you the best.
        Onward and Upward !

        Diagnosed 4/07 HCM with fixed & dynamic obstruction
        Myectomy with resected cordonae tendonae 4/08 CCF
        ICD 10/08


        • #5
          Re: rejection and leart my lesson

          Margi - I am sorry that you had to learn this hard lesson and I hope that it is not too late and that no permanent damage was done.

          We are all pulling for you, but the person that has to do the most work is you. And while you didn't ask for any of this, and we all empathize with your situation, you have it in your power to take charge of your fate. I am confident that you can and will do it.

          Wishing you the best....

          Daughter of Father with HCM
          Diagnosed with HCM 1999.
          Full term pregnancy - Son born 11/01
          ICD implanted 2/03; generator replaced 2/2005 and 2/2012
          Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


          • #6
            Re: rejection and leart my lesson


            Glad you are ok not good but ok, and a new beginning.fake Care of YOURSELF, we want you around for a long time.

            Diagnosed 2003
            Myectomy 2-23-2004
            Husband: Ken
            Son: John diagnosed 2004
            Daughter: Janet (free of HCM)

            Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


            • #7
              Re: rejection and leart my lesson

              Hang in there Margi!

              I always look forward to reading your posts and seeing how you're doing. You've had to hit rock bottom to realize your mistakes but at least you're willing to make changes now. I'm so happy to hear that.
              I think you're a brave woman. Your transplant hasn't broken your spirit and will to have fun and I like that about you. I hope you stick with your promise to make changes to keep up with your daily regimen of pill taking and staying sober.

              You've got people all around the world wishing you the best. Do us proud
              Diagnosed during pregnancy age 30, July 2007
              2 mutated genes found in Feb 2009
              ICD Nov 12, 2009
              2 daughters born in '07 & '09. Normal EKGs.
              No known family history of HCM
              In 1995, at age 18, an echo for a misdiagnosed mvp showed HCM but it went unnoticed.
              Still jog and feel no symptoms on most days.


              • #8
                Re: rejection and leart my lesson

                Ok.. the way I see it.. you cant change the past but you sure as heck can change the future... and THANK GOD you have a future... use it well dear!
                Lots of love and a big hug!
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)


                • #9
                  Re: rejection and leart my lesson

                  Hi Margi,

                  Good girl!!!

                  Like everyone said, what's done is done, now you can begin anew. You are going to have a wonderful life sweetie
                  49 yrs. old
                  Diagnosed at 31.
                  Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                  First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                  Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                  Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                  My brother passed away suddenly at 34 yrs old from HCM.
                  2 teenage children, ages 17 and 15.


                  • #10
                    Re: rejection and leart my lesson

                    Hi Margi,
                    It's never fun to have your butt kicked -- especially when it's really scary stuff like this.

                    I hope you never have to go through stuff like this again!

                    Myectomy on Feb. 5, 2007.