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Edema post transplant

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CBK75 Cardiac Arrest 1994
CBK75
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  • Edema post transplant

    For all of you post transplant people out there, is edema an issue? Fluid restrictions?


    Thanks for your input

    Chris
    Chris

    35 years
    Diagnosed with HCM 1991
    05/1994-Cardiac Arrest
    06/1994-Myectomy
    09/2001-1st ICD Implantation-University of MN
    12/2001-2nd ICD Implantaion-University of MN
    11/2008- Offically Listed for a heart transplant
    09/2010 Fathers Day! Heart Transplant

  • #2
    Re: Edema post transplant

    Chris, I take 20 mg of Lasix daily. I really have no edema anymore unless I go off the Lasix a couple of days or sit with my feet dangling for extended period of time. All of my abdominal fluid issues before transplant, this is a piece of cake. Some of the meds can cause swelling, Norvasc for bp comes to mind and of course the prednisone. How are you doing these days?
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

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    • #3
      Re: Edema post transplant

      Midge,

      My boyfriend takes Norvasc for high BP and his ankles and feet are very swollen everyday.
      49 yrs. old
      Diagnosed at 31.
      Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
      First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
      Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
      Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
      My brother passed away suddenly at 34 yrs old from HCM.
      2 teenage children, ages 17 and 15.

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      • #4
        Re: Edema post transplant

        Hi Chris-
        Emily has not had any problems with fluid post-transplant. No Lasix since heart failure. I think this is just one of those things that varies a lot between people, but is fairly common.

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        • #5
          Re: Edema post transplant

          stirght after transplant my ankles and feet were swollen for a few weeks but apart from that have had no fluid issues
          Margi*
          http://margi-inskeep.blogspot.com
          Forever Young

          I was diagnosedwith HCM at 6.
          Went into Atrial fibrillation so had a ICD put in at 16
          Went into Heart failure at 17
          Got a heart transplant at 21(2009)

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