If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

No 0 this time

Collapse

About the Author

Collapse

EmilysMom Find out more about EmilysMom
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • No 0 this time

    Emily had a biopsy on Monday for her 9 month post-transplant visit. The biopsy showed some mild rejection. We are hopeful that adjusting her meds will clear it up. The frequent biopsies are done in order to catch rejection like this in its early stages, but we felt pretty discouraged to have this happen. She is absolutely consistent about taking her meds. We assume that adjusting some of her doses down in the last few months to allow her white count to recover a little contributed to this bit of rejection. She still feels well, and is hoping the higher doses won't bring back the nausea.

  • #2
    Re: No 0 this time

    Deb,
    Here's hoping for the best.

    Gordon
    Myectomy on Feb. 5, 2007.

    Comment


    • #3
      Re: No 0 this time

      Sorry to hear she did not get that coveted 0 .. Hoping that it will all settle down and she will once again have a 0 .. How maddening it has to be to follow the rules so well and still get signs of rejection.. thinking of you all... hugs.

      Pam
      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

      Comment


      • #4
        Re: No 0 this time

        I know it is a scary thing not to get that 0 but as long as they are not going to blast her with IV Celestone it has to be mild. I think everyone at some point gets a 1 or so. Hopefully by now her tummy can take the increase in meds.
        Midge

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.

        Comment

        Working...
        X