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  • No 0 this time

    Emily had a biopsy on Monday for her 9 month post-transplant visit. The biopsy showed some mild rejection. We are hopeful that adjusting her meds will clear it up. The frequent biopsies are done in order to catch rejection like this in its early stages, but we felt pretty discouraged to have this happen. She is absolutely consistent about taking her meds. We assume that adjusting some of her doses down in the last few months to allow her white count to recover a little contributed to this bit of rejection. She still feels well, and is hoping the higher doses won't bring back the nausea.

  • #2
    Re: No 0 this time

    Here's hoping for the best.

    Myectomy on Feb. 5, 2007.


    • #3
      Re: No 0 this time

      Sorry to hear she did not get that coveted 0 .. Hoping that it will all settle down and she will once again have a 0 .. How maddening it has to be to follow the rules so well and still get signs of rejection.. thinking of you all... hugs.

      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


      • #4
        Re: No 0 this time

        I know it is a scary thing not to get that 0 but as long as they are not going to blast her with IV Celestone it has to be mild. I think everyone at some point gets a 1 or so. Hopefully by now her tummy can take the increase in meds.

        Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
        ICD&Pacemaker 1996
        Heart transplant March 19, 2004 @ Mayo Rochester
        Mom of Kaye.