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6 months yay


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Barely Heart
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  • 6 months yay


    hows it going ?
    well yesterday was my 6 months post transplant so yay

    i had a byopise yesterday and it come back with quit a bit of rejection so im staying up in auckland thats our transplant center and there just going to pump some drugs thou the IV , so hopefuly that get rid of it and if all goes well they will let me go home next week sometime.
    i think its partly my fault as iv been a little to slack with my drugs wont b doing that again

    hope all is well with evveryone else

    Forever Young

    I was diagnosedwith HCM at 6.
    Went into Atrial fibrillation so had a ICD put in at 16
    Went into Heart failure at 17
    Got a heart transplant at 21(2009)

  • #2
    Re: 6 months yay

    I'm sorry to hear this. Please do be very careful to follow your medication schedule strictly. Along with many adjustments, it really has to become a lifestyle change. I'm sure it is much easier said than done, but I know it is very important for your health.

    Hang in there, and congratulations on your 6 month mark and your gift of a new life. Keep us posted on how you are doing.
    Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.


    • #3
      Re: 6 months yay

      Margi, Congrats. I hope you come out of this rejection fine. The medicines are now a part of your new life and it is very important to keep them going at the specific times. I carry my pills with me so I am not tied to the house. If you can get a box with 4 dividers for medicine I find that works very welll. Remember swallowing pills is a small price to pay for the new life you have been given. Please take care of your heart. Keeping you in my thoughts and prayers.

      Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
      ICD&Pacemaker 1996
      Heart transplant March 19, 2004 @ Mayo Rochester
      Mom of Kaye.


      • #4
        Re: 6 months yay


        Congrats on the 6 months, but you have to take your meds, it is just a fact of life for you now, we want you around for years to come. Good Luck and be well.

        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


        • #5
          Re: 6 months yay

          Margi - Congratulations - hope this treatment works quickly and you are home soon -



          • #6
            Re: 6 months yay

            Congratulations on the 6-month mark! Remember, only YOU can take the meds as prescribed. This is your best defense against rejection, although it can still happen. Best of luck to you. We want your input for many years to come!


            • #7
              Re: 6 months yay

              Margie, congratulations on the 6 month mark.

              I think the others have said it (and you know it too) -- you need to take your meds! It doesn't mean that you can't ever enjoy yourself; it just means that you have to make yourself remember to take the meds on time.

              As JEDoe said, there aren't any guarantees that you won't run into trouble, but it's a lot more likely that you will if you don't take your meds. The kind of divider that Midge mentions is a good idea. You can set alarms on your phone or PDA so that it reminds you to take them. I do both of these things; it doesn't mean I'm always exactly on time, but it does mean that I'm never more than a couple of hours off on taking my meds.

              Myectomy on Feb. 5, 2007.


              • #8
                Re: 6 months yay

                Hi Margi

                Congratulations on the 6 month mark!!

                Everyone here cares about you that's why they are telling you to take your medication.

                I hope you feel better and can go home very soon.

                Hugs and more hugs,
                49 yrs. old
                Diagnosed at 31.
                Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                My brother passed away suddenly at 34 yrs old from HCM.
                2 teenage children, ages 17 and 15.


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