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  • #16
    Re: Waiting...

    Copngratulations on your new heart. Sounds like your recovery so far is going great. Way to go, CCF Transplant Team !! Do, let us know how things continue to go for you. You will have quite a story to tell !!
    Onward and Upward !

    Diagnosed 4/07 HCM with fixed & dynamic obstruction
    Myectomy with resected cordonae tendonae 4/08 CCF
    ICD 10/08


    • #17
      Re: Waiting...

      Congratulations on that new birthday. I cannot believe out of ICU so fast. Good for you. Your biopsy will be a breeze for you. Keep blowing in your little plastic thing. Again Congrats.God Bless the donor.

      Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
      ICD&Pacemaker 1996
      Heart transplant March 19, 2004 @ Mayo Rochester
      Mom of Kaye.


      • #18
        Re: Waiting...

        Congratulations! I hope things continue to go this well.

        Myectomy on Feb. 5, 2007.


        • #19
          Re: Waiting...

          Yes, it sounds like you are doing great. We are so happy for you. Keep up the good work.
          Daughter of Father with HCM
          Diagnosed with HCM 1999.
          Full term pregnancy - Son born 11/01
          ICD implanted 2/03; generator replaced 2/2005 and 2/2012
          Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


          • #20
            Re: Waiting...

            This is great news. I hope everything continues to flow smoothly. I am with Midge, God Bless the donor. This is all so amazing, I will continue to pray and await the updates.
            Choose to laugh instead of cry...it's prettier!
            You always have the option to change.

            Diagnosed 1994 with no family history
            AICD 10/06
            Mayo Clinic Myectomy 11/07 Joe Dearani


            • #21
              Re: Waiting...

              I can't tell you how happy I am for you! My granddaughter, Sara, had her transplant in March, and it was five days before she got out of the ICU! But I can tell you, that 5 1/2 months since her transplant and she is doing so well you'd never know she was ever sick! Good luck to you going forward. I'll be honest...I don't think I would have survived a wait as long as yours. Sara only waited 2 months! Do what the docs say, and get your recovery on the right path! Best of luck.


              • #22
                Re: Waiting...


                I am so happy for you

                God bless the donor and God bless you too.

                I wish you the best new life ever!

                Many hugs,
                49 yrs. old
                Diagnosed at 31.
                Cardiac Arrest 2003, RF Ablation in AZ, no positive result -
                First ICD 2003 - In 2006 lead went bad, abandoned lead, threaded new one & new generator
                Myectomy 5-5-05 at The Cleveland Clinic - Dr. Lever & Dr. Smedira -heart surgeon.
                Currently have Grade 2 Diastolic Dysfunction with pulmonary hypertension & pulmonary edema.
                My brother passed away suddenly at 34 yrs old from HCM.
                2 teenage children, ages 17 and 15.


                • #23
                  Re: Waiting...

                  Congratulations, this is wonderful news. Good for you and God bless you both.
                  Diagnosed (w/obstruction) 2003 at 39
                  Alcohol Septal Ablation Feb. 2006
                  Myectomy April 2007 Cleveland
                  Pacemaker dependent (no ICD)
                  Thankful and doing fine


                  • #24
                    Re: Waiting...

                    glad you can stop waiting now
                    alrealy awake thats great , hope all goes well from here on
                    getting my transplant was the best thing that eva hspperened to me
                    you will never look bak

                    Forever Young

                    I was diagnosedwith HCM at 6.
                    Went into Atrial fibrillation so had a ICD put in at 16
                    Went into Heart failure at 17
                    Got a heart transplant at 21(2009)


                    • #25
                      Re: Waiting...

                      Great News!!! I hope you are still doing great and you can get out of there soon and bless the donor and the family.

                      Diagnosed 2003
                      Myectomy 2-23-2004
                      Husband: Ken
                      Son: John diagnosed 2004
                      Daughter: Janet (free of HCM)

                      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


                      Today's Birthdays