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Sara gets her heart tonight!


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JEDoe Find out more about JEDoe
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  • Sara gets her heart tonight!

    Sara will be getting her heart tonight! She has to be at Children's Hospital Boston at 11:00 pm and we expect the surgery to take place around midnight. Pray for us!!!

  • #2
    Re: Sara gets her heart tonight!

    WOW !!! Such good news! Wishing her a speedy recovery and a special one for the donor family as well.
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .


    • #3
      Re: Sara gets her heart tonight!

      Huge prayers will be sent out for Sara and for her donor's family. Pleae keep us updated whenever you have a spare minute.

      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.


      • #4
        Re: Sara gets her heart tonight!

        My thoughts are with her and with the donor's family. It's almost five years to the day my mom had her transplant. What a gift!


        • #5
          Re: Sara gets her heart tonight!

          My thoughts and prayers are with Sarah, and you and her donors family.

          Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
          ICD&Pacemaker 1996
          Heart transplant March 19, 2004 @ Mayo Rochester
          Mom of Kaye.


          • #6
            Re: Sara gets her heart tonight!

            I hope that all goes well for Sarah. Let's hope that Children's Boston continues their good work as they did for Emily last month.
            Daughter of Father with HCM
            Diagnosed with HCM 1999.
            Full term pregnancy - Son born 11/01
            ICD implanted 2/03; generator replaced 2/2005 and 2/2012
            Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


            • #7
              Re: Sara gets her heart tonight!

              Your entire family are in my prayers!

              I'm looking forward to a post about how well it went!
              Marki (34) mom to: Quest (15) positive HCM, Zak (10) HCM, waiting on a new heart for 14 months now, Sutton (7) gene negative, and MJ (2) no HCM. Wife to Michael (35). ***Remembering Priscilla (passed on October 31, 1999 @ 33 yrs old), Janice (passed on September 1, 1974 @ 16 yrs old) and Shirley (passed on October 23, 1995 @ 58 yrs old).*** All were from HCM.


              • #8
                Re: Sara gets her heart tonight!

                Thank you all for your generous thoughts. I will updated everyone as we get news.


                • #9
                  Re: Sara gets her heart tonight!

                  All the best to Sara and the donor family and to your entire family

                  Diagnosed 2003
                  Myectomy 2-23-2004
                  Husband: Ken
                  Son: John diagnosed 2004
                  Daughter: Janet (free of HCM)

                  Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9


                  • #10
                    Re: Sara gets her heart tonight!

                    Many prayers for Sara and you all.

                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


                    • #11
                      Re: Sara gets her heart tonight!

                      WOW!! WOW!! WOW!!

                      Thank you Janet for posting.

                      Hope it all went well. We are so excited for Sara. Tell her we send our best. It has been exactly 7 weeks for Emily.

                      Please let us know when you can how she is doing.

                      Deb, Bob & Emily


                      • #12
                        Re: Sara gets her heart tonight!

                        Unfortunately, as always happens, there were delays in retrieving the donated heart. It is 10:20 am and Sara is currently in surgery. We expect the heart to arrive in the next 10 minutes and then things will get going! We have been told the heart is an excellent match, and we expect things to go smoothly. One never knows, and we can only hope and pray.

                        Hope Emily is feeling better. We think of her every day!


                        • #13
                          Re: Sara gets her heart tonight!

                          Thanks Janet for the status report. I will be watching for further news. I look forward to a good report from the transplant surgeon post procedure.

                          I am thrilled for all of you. Stay positive and keep the faith !! Prayers for the transplant team and the donor family.

                          Onward and Upward !

                          Diagnosed 4/07 HCM with fixed & dynamic obstruction
                          Myectomy with resected cordonae tendonae 4/08 CCF
                          ICD 10/08


                          • #14
                            Re: Sara gets her heart tonight!

                            Janet...I am thinking and will be praying for Sara and all of you today! Best of luck!! Barb
                            Diagnosed Aug 2006 Myectomy 10/25/06 ICD 07/18/08


                            • #15
                              Re: Sara gets her heart tonight!

                              What wonderful news! Prayers for Sara and her donor's family. I'll be looking for updates.


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