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hi I don't do this much.


About the Author


everlastingbaby I am very friendly and I love spending time with my friends. Also chatting with the ones who don't live close. We have so much fun goofing off!
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  • hi I don't do this much.

    Hi I am really scared of have HCM. I am not treated like all my friends I am teated like I can't do anything.
    my teachers even restrict me.
    Love to All
    Stay youthful in all you do


    T-Bear Everlasting

    aka Resa

  • #2
    Hi. Are you also sixteen_and_still_living? You should be careful when living with HCM, but you shouldn't feel like you're in jail. What kind of treatment are you on? Any medicines? How thick is your heart? Do you have an ICD? There are a lot of questions before we can try to help you. Tell us more about yourself and we'll be glad to try our best.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Everlasting --
      Try to call the HCMA office - lets talk and maybe we can help get you some information that will make your teachers, friends and family a little more comfortable with HCM.

      take care,
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)


      • #4
        i know i have replied to a couple of your posts but heres one more. i would love to share my story with you, i wasnt diagnosed as young but i still know what its like to have a limiting disease and want to have fun. i got a lot of stuff i loved taken away when i was diagnoesed, and im here to talk, support, and encourage you if you ever need it. either pm me, AIM me (supernelly87) or email me ( [email protected] ) if you ever want to talk
        \"The heart swells at the magnificance\"

        1 timothy 4:12: Do not let others look down on you because you are young, but set an example for believers in speech, in life, in love, in faith, and in purity.


        • #5

          my friends and teachers do the same thing ,i think its jut normal for them 2 all think the worst and think we cant do any think ,try talking 2 them they might not know there doing it , i talked 2 my frieends i dont think they wil eva stop doing it but they dont do it as much

          Forever Young

          I was diagnosedwith HCM at 6.
          Went into Atrial fibrillation so had a ICD put in at 16
          Went into Heart failure at 17
          Got a heart transplant at 21(2009)


          • #6
            yeah, they do it to me too. now its like ive become a burden to them. all of them doctor bills are so expensive, i can do the same things my friends want to or can do. sometimes i think they all feel trapped, and in return i feel trapped also. I know i shouldnt, but i cant make them understand why i have to be careful. i think they only think i get a little dizzy then i fall, they dont realize how much that ICD hurts or how scary the whole ordeal is. I think some of them finally realized about two weeks ago when i was in the pool (didnt know i couldnt do that) and i got shocked once, this is when i blacked out, i stood up and started walking to the center of the pool then i fell and my friend Toby was making sure i wouldnt drowned so he caught me and everyone feeling the same way reached for me, only a few actualy touched me, and thats when i got shocked the second time. everyone eles in the pool says they felt a small tingle. Everyone is all right.


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