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  • #16
    re

    abc




    abc




    abc
    Margi*
    http://margi-inskeep.blogspot.com
    Forever Young

    I was diagnosedwith HCM at 6.
    Went into Atrial fibrillation so had a ICD put in at 16
    Went into Heart failure at 17
    Got a heart transplant at 21(2009)

    Comment


    • #17
      Hi Margie. I'm glad that Lisa's post got you thinking. I just want to add one thing about telling your friends about your HCM. They won't understand until you teach them what it is. Most people, even adults, think of heart conditions as something caused by how much you weigh or what you eat. It's up to you to teach them that what you have is caused by a gene in your DNA being messed up, and that it's been that way since you were born. They will understand if you're patient enough to teach them. Take care.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #18
        re

        abc




        abc




        abc
        Margi*
        http://margi-inskeep.blogspot.com
        Forever Young

        I was diagnosedwith HCM at 6.
        Went into Atrial fibrillation so had a ICD put in at 16
        Went into Heart failure at 17
        Got a heart transplant at 21(2009)

        Comment


        • #19
          Margie,

          Lets take this one step at a time. You have taken so much energy to hate your HCM and now you are going through the process of dealing with your HCM YOURSELF. Let yourself do that for a while. In time you will be able to share the information with others - but right now no matter what anyone says to you regardless of how caring they try to be I doubt it will ever be the right thing and thereby only make you frustrated.

          I am so proud of your maturity and your willingness to cut back on the drinking. Kiddo take it one step at a time and in a few weeks you will look back on your life and be proud of yourself for the changes!

          I am very glad that we are able to be here to help you and please know you can count on us for support. AND if you ever need to get out some of that frustration toward HCM - WE all UNDERSTAND and are happy to talk it out with you.

          BIG HUGS!
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment


          • #20
            It helps to sit and chill when your smoking, or atleast I have noticed that with my experiences.
            Although being diagnosed with HCM was the end of the world for me, it has opened up a beautiful new world for me too. \"To thine ownself be true.\" ~Polonius

            Comment


            • #21
              friends mean well but clueless

              The only person at school who needs to know about your HCM would be the nurse so that if you ever did need help at school, they wouldn't be totatlly clueless.

              You can just give them this web site address if they have questions.

              As for your friends, yeah, most of them are not going to get it. My husband didn't even get it. He's not my husband any more! (I'm not suggesting dumping your friends, I'm just saying, this HCM crud is hard even for "adults").

              Be good to yourself.

              S

              Comment


              • #22
                curious as to why you deleted all of your questions out. They weren't bad. And another person could really learn from them.


                Mary S.

                Comment


                • #23
                  re

                  heya

                  yeah ur right sumone could learn from they
                  and i know they werent bad
                  i pm u and explan

                  *m*
                  Margi*
                  http://margi-inskeep.blogspot.com
                  Forever Young

                  I was diagnosedwith HCM at 6.
                  Went into Atrial fibrillation so had a ICD put in at 16
                  Went into Heart failure at 17
                  Got a heart transplant at 21(2009)

                  Comment

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