If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

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Lisa Salberg Find out more about Lisa Salberg
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  • Reenie
    replied
    Re: Welcome

    Cynthia, I was really happy to meet you this weekend. You keep up that great attitude!

    Reenie

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  • AngelAlie27
    replied
    Re: Welcome

    Lisa, Just "hanging out" and found this new spot. Great idea for the young with HCM. I'll get things started.
    I'm 17 and I have HCM but not in the way many of you may have "it". I do not have any symptoms yet but know that I am "genetically positive" for the disease. My mother, grandmother, aunt, uncle, sister, and several cousins have HCM. Stay positive, learn all you can about it, do all you can to let other people know about HCM, and get involved with this great group of people.
    I went to the annual meeting this year--got back just a few hours ago. It is a great way to stay informed. Maybe some of you can come next year. Look forward to seeing you there. Maybe we can go to a movie or to the pool as a group and "hang out " instead of staying for ALL of the meeting.

    Cynthia Patterson

    Leave a comment:


  • Lisa Salberg
    started a topic Welcome

    Welcome

    Our younger posters have asked for their own "room". So we have added this new space just for them.

    You are all welcome to post here - but lets try to let them talk with limited input from adults.

    OK guys - keep your room clean and have a great time!

    Please remember something....I was diagnosed when I was 12. I may sound VERY old to you because I am nearly 36 years old... however my teenage years seem like yesterday and I know all too well some of the issues you are each dealing with. From time to time I will share a story from my experience with HCM in school, dating, finding a job and other things that you too may be going through. I will never tell you what to do or tell you how to act...but I will share some thoughts and ideas with you.


    Be well,
    Lisa

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