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Eva/Rania's Myectomy

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Desert Flower single female who enjoys life and wants to kick HCM's butt :) Find out more about Desert Flower
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  • Eva/Rania's Myectomy

    Hello my dear friends and Colleagues, Thank you so much for your friendship and support in the last 6 months. I will be going in to surgery in a few hours.

    I am doing well, and looking forward to a quick recovery and getting back to work soon. I miss my wonderful job.

    If you would like to get updates on the surgery and my progress, please go to
    www.thestatus.com
    patient name: Hijazeen
    password: joyful-1

    My sister will also be sending out periodic updates and hopefully I will be back on line by Wednesday.
    Best wishes to all of you,
    Rania
    HCMA Rocks
    Diagnosed with HOCM Dec. 2007 at 40
    Myectomy 12/08/08 UoMichigan
    Treated for "Asthma" since 2004 and took Claritin-D every night for 3 years- while my "Asthma" got worse and worse.
    Mother has mild HOCM gradient of 25

  • #2
    Re: Eva/Rania's Myectomy

    May your recovery be swift! We're thinking of ya!
    Marc
    Diagnosed @ 48
    Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
    Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
    AICD - Valentines Day '08, Spark Plug replaced 11/14
    After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
    Quietly going insane . . .

    Comment


    • #3
      Re: Eva/Rania's Myectomy

      Best wishes!!!

      We look forward to hearing all about U of M's surgical experience from your point of view - that new heart hospital is really something!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: Eva/Rania's Myectomy

        Here's hoping your recovery is uneventful. Keep us posted!

        Gordon
        Myectomy on Feb. 5, 2007.

        Comment


        • #5
          Re: Eva/Rania's Myectomy

          There is a brief update posted on Rania's page on thestatus.com: "Rania is out of surgery and it was successful. She is still sleeping but will be revived at around 2pm, EST." So good news so far.

          Rania, congratulations, you are on the other side of the surgery! Sending prayers and good wishes your way for a quick and smooth recovery

          Rich
          Myectomy and mitral valve repair, April 2007, St. Luke's Hospital (NYC)

          Comment


          • #6
            Re: Eva/Rania's Myectomy

            Originally posted by Lisa Salberg View Post
            Best wishes!!!

            We look forward to hearing all about U of M's surgical experience from your point of view - that new heart hospital is really something!

            Lisa
            Lisa, I can tell you first hand that U-M is first rate when it comes to heart surgery. Rania will be having Dr. Francis Pagani as her surgeon and the guy is one heckuva doctor. From the time I went into pre-op till I went home, the entire staff in the cardiac unit took excellent care of me. If you needed something, they were on the spot with it. I can't say enough about any of them. Rania is in good hands, believe me.

            Comment


            • #7
              Re: Eva/Rania's Myectomy

              Well, I am back!!!

              This will be very short as I am still somewhat spaced out.

              Today it is 8 days post-surgery and I wanted to THANK everyone who stood by me and supported me in words, deads, prayers or thoughts during this whole process. (Hey, I can still type and spell, (slowly) so I guess pump head is not so bad!)

              There is so much to tell in the next few weeks. And I will happily share it so others facing myectomy may benefit from my humble experience like I have benefitted trumendously from the experience of others before me.

              I also had my last pain pill at 11 am today and am going to try to "rough" it with OTC stuff, I hated how spaced out I became on the real stuff.

              My surgeon is/was amazing. Dr. Francis Pagani. He provided excellent care and came by to see me every day.

              Currently, my legs and feet look like stumps due to 20 lbs of water retention all centered in that area.

              My back pain post surgery is 10 times worse than the pain on the front.

              The incision is almost beautiful, and I will post a picture of it soon. I am not worried about the scar though I won't go crazy and get a Tattoo like Kevin!

              Post surgery: difficult pain management, but no A-fib, or any other complications, so I guess my recovery has been easy somewhat, but I don't know any better.

              Thank you to all the wonderful HCMrs who posted on my www.thestatus.com site. all of your love and comments were like a warm blanket around my heart.

              more later,
              all the best,
              rania
              Diagnosed with HOCM Dec. 2007 at 40
              Myectomy 12/08/08 UoMichigan
              Treated for "Asthma" since 2004 and took Claritin-D every night for 3 years- while my "Asthma" got worse and worse.
              Mother has mild HOCM gradient of 25

              Comment


              • #8
                Re: Eva/Rania's Myectomy

                Rania,
                Congratulations on having the surgery behind you and on being home. So glad to hear that you've done so well.
                Continued prayers,
                Theresa
                Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

                Comment


                • #9
                  Re: Eva/Rania's Myectomy

                  Rania - glad to hear from you - best wishes for a speedy and uncomplicated recovery - Linda

                  Comment


                  • #10
                    Re: Eva/Rania's Myectomy

                    Too bad your not going for the tattoo
                    Be well and don't over due it. Don't look for daily progress, look back every couple and be amazed at how fast your progressing.
                    Kevin

                    Comment


                    • #11
                      Re: Eva/Rania's Myectomy

                      Rania - Hurray! It is great to see you back here after your surgery. I hope that you continue to feel better every day. I personally found that once I gave up the prescription pain pills, I felt much better.

                      Remember to walk and blow in your incentive spirometer several times a day.
                      Daughter of Father with HCM
                      Diagnosed with HCM 1999.
                      Full term pregnancy - Son born 11/01
                      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

                      Comment


                      • #12
                        Re: Eva/Rania's Myectomy

                        Welcome back to the world! Your experience sounds a bit like mine -- back pain worse than chest pain, and elephant feet where your little feet once were. All this will improve -- just keep walking, and hang in there!

                        Gordon
                        Myectomy on Feb. 5, 2007.

                        Comment


                        • #13
                          Re: Eva/Rania's Myectomy

                          Welcome back from the dark side of the moon! I experienced severe back and shoulder pain for weeks after my myectomy. My incision really didn't hurt that much, go figure. But, it will get better. I plan to resume my daily swimming activities next month.

                          Best wishes!!
                          Rick W.

                          Diagnosed with HOCM April of 2006
                          Myectomy September 11,2008 Cleveland Clinic
                          Dual chamber ICD implanted 12/23/09

                          Comment


                          • #14
                            Re: Eva/Rania's Myectomy

                            Great to hear from you Rania! Congratulations on making it through the surgery. I ditched the narco laced Tylenol 3 after a few days home and had my wife get a big bottle of generic ibuprofen from Costco, and it seemed to do the trick. I somehow escaped the back and shoulder pain that many folks report, but I did get arrhythmia a couple of weeks down the road. So as others have said, keep walking but don't overdo it. Get all the naps in you want as well. As far as walking, I recall you considered getting a treadmill now that winter is settling in, and the good thing about that is that you can pace yourself in a very controlled manner with such a device. It may have helped me to not overdo it in my recovery. Or not.

                            Keep us up to date on your progress!

                            Rich
                            Myectomy and mitral valve repair, April 2007, St. Luke's Hospital (NYC)

                            Comment


                            • #15
                              Re: Eva/Rania's Myectomy

                              Rania - So glad that everything came out as planned. Walk, Rest & Breathe in your inspirometer. Enjoy the break!

                              I just found my to-do list for my time off! I didn't do a darn thing! No mid-morning movies, No painting the family room (towards the end of recovery). All I did was walk, go to gym, walk, clean pool, walk.
                              The pool is clean & dog is 20 lbs lighter.

                              Enjoy this time with your family & friends.
                              Marc
                              Diagnosed @ 48
                              Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
                              Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
                              AICD - Valentines Day '08, Spark Plug replaced 11/14
                              After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
                              Quietly going insane . . .

                              Comment

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