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Epicardial + Myectomy?

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  • #1

    Epicardial + Myectomy?

    Hi!

    My son Mattan is 11 years old. He has already an AICD' but we found out that is not enough for him...
    The doctors want to try the alternative of Epicardial patch ICD and in the same time to perform a myectomy.
    Mattan's heart mass is very large because of his HOCM - (4cm thick septum). The superfluous mass not only obstructs the blood flow (with a large gradient of 40mmhg-80mmhg), but also disturbs the conduction and the ability to defibrillate. Therefore one radical solution that has been suggested is to combine the Epicardial patch ICD with septal myectomy.
    Is it possible to "combine" both in one operation?
    In a child?
    Thanking you in advance,
    Daniela.
    Wishes for healh, peace and love!

    Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
    Haifa - Israel.
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  • #2
    Re: Epicardial + Myectomy?

    I think that is a question for the surgeons to answer. I see you are in Isreal. If possible, I would recommend getting your son looked at by the Cleveland or Mayo Clinic's. Please email Lisa, the HCMA president ([email protected]) to see if there are any HCM specialists closer to you she can recommend. I know there are several good docs in Europe.

    Keep us posted.

    S

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    • #3
      Re: Epicardial + Myectomy?

      Thank you for your quick response!
      Lisa helps us a lot!!!
      she helped us also when we implanted the AICD in Boston (by Dr. Berul), since there is no experience in our country.
      She is our Star!
      Wishes for healh, peace and love!

      Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
      Haifa - Israel.

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